Benepali experience : Sense I started benepali I became... - NRAS

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Benepali experience

Simon14 profile image
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Sense I started benepali I became tired more than usual plus I am getting more tired than ever I hardly stand up from bed until 3 or 4 pm afternoon and I am still tired and have hot flash and night Sweat stomach pain and more stressed I hardly get outside I am home most of the week and under my eyes very dark like I have not sleep it for a week flush feeling and after the injection the first two nights hardly could open my eyes and then after the two night I can not a sleep it night a stay in bed until morning 6 am my sleep pattern get mixed up and I still have some pain in my joints and my legs keeps shaking like restless leg syndrome and I already have been taking the Injection for six months it least after I was changed from enbrel

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Simon14
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Birthdaygirl profile image
Birthdaygirl

Hi Simon

Have you an appointment soon to see your consultant? Or recent blood tests? If it was me I would contact the hospital rheumy team and have a chat about the side effects and symptoms and get some advice.

BG

Lottiemoocat profile image
Lottiemoocat

Same experience as you,going from enbrel to benepali. Spoke to hah,they advised me to see rheumatologist. Appt for monday(12th). Am going to ask to be put back on enbrel,worked really well for me. Will post how I get on. Take care.x

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