I have two bad days of terrible flare up now I'm left feeling tired and worn out even my partner says it's changed me this time I look old now am awaiting to go on new meds has bloods in July rang them constantly since with them say we get letter to u nothing not had nothing a little bit upset now as got a leg size of elephant got hands like Popeye and no dame energy sorry rant over xx
Feel exsaulted: I have two bad days of terrible flare... - NRAS
Feel exsaulted
Get yourself to the drs today asap if not go to a&E darling.xxxx
Try to take it gently, won't you? Three long shifts in a row are going to be hard going even if you're feeling ok. Let us know how you get on please. Hugs
Jan
Poor you x rant as much as you want !!! We all need to get it of our chest now and again xx
If your leg really is badly swollen & hasn't been seen by doctor call 111 now, & demand to speak to someone with some clinical qualification.....it could be the sign of something really serious.
Food shopping will wait...if you want to be healthy enough to eat what you buy get that leg looked at!
Stop worrying.... we all all look in the mirror after a flare & think we have turned into our mother...but things always settle down & the years fall away.
Oh my goodness. How amazing to do what you do. Its easy to say but if someone else wrote that post I can imagine you would say something like.....rest doesnt matter about shopping and work, but we all expect a lot from ourselves and also a lot more at this time of year. All can say is try and do as little and pace yourself as much as possible. Be kind to yourself you are precious.
I understand that. My rhemy says im driven and i said no im not im focused and task orientated...of course he was correct. I thknk it seems, from what little i know, its part of many of our characters. Many of us seem busy people and determined to fight and push, what im very slowly learning is that RD fights and pushes harder and has the,so very annoying, ability to stop us. All i would say is be kind to your body as much as you possibly can and let go of anything that would give you a break to get energy for the next thing. You know this better than me im sure. Im trying to learn to work with my body rather than getting upset and cross because its not the body i know anymore...im trying.... I really hope you can have the odd recharging your batteries time over the next demanding time. Take care and i wish you all the very best. Oh yes and ment to say....ranting is good if it helps ☺
Oh my goodness. Such a demanding job. Presume you at work now. I wake thru the night so thats when i usually read.peoples posts. I cant work anymore, its a very strange feeling, but at least I know, where as you are still in that difficult time of shall I continue or not. Maybe you could use this next few months to look at how you can support yourself timewise and financially (if thats relevant) so if you do stop work its planned which may help your transition. Just a thought, you know your circumstances best. It happend suddenly to me and I still struggle to think im no longer working, even tho my body couldnt its the emtional readjustment i find hard.
Well done. I think you are amazing to do what you do. Take care. ☺.