Palindromic

[Kasginman]

Anyone else out there with this ?? My foot been the worst for pain but now my knuckles are really throbbing . They did a bit to start with but now awful pain . Also my finger tips look a bit purple and are sore. Got rheumatologist appt tommorow

[Elmo333]

Hi. Yes, I have RA and palindromic. Had a terrible 18 months with pain travelling around all my joints every few days. Sometimes the pain is agony but I tell myself I'm lucky because it is shortlived!!! The last 6 weeks have been brilliant until yesterday where I now have a painful hand, hip and shoulder! Are you seronegative or do you have positive CCP/RF. I do have have all these numbers out of range but I know lots of people don't particularly with palindromic.

[Beviejon1 in reply to Elmo333]

I had to chuckle when I you said your lucky cause its temporary.I too have pal as well as RA and when I have pal flare I tell myself the same thing.

[caggy]

Yes I was told by consultant last year that I had Palindromic RA I have had RA for 8 years now and it still has its ups and downs, the short lived bit is good as you know that after a couple of days it will have moved and sometimes for weeks before it starts its run around again. My husband is quite used to me saying oh its here today and there another! if that makes sense.

[Beviejon1 in reply to caggy]

Yes here there and everywhere I've even had swellings in my throat.

[Elmo333 in reply to Beviejon1]

Yep me too

[Kasginman in reply to Beviejon1]

Funny you say that !! My throwt feels swollen too, I thought I may have a goitre !! I'm seeing my rheumatologist again today ...

[Hidden]

Yes I had this for two years, although it was misdiagnosed as RA, but it burnt itself out with help of Methotrexate and Hydroxichloraquine - so the rheum changed my diagnosis to non erosive RA.

I later learned that I have Sjögren’s as my primary disease rather than RA - but for 2 years it was mostly Palindromic in the way it would arrive and depart all around my body. In my case it was just another way that autoimmunity manifested itself though. Now most manifestations of my Sjögren’s are neurological.

[Beviejon1 in reply to Hidden]

I've had pal for 24 years. O was told by one rheumy years ago that yes it would burn out. Mine never did.I'm now on arava and the swellings are not as bad. I'm hopeful that the Arava is helping.

[Hidden in reply to Beviejon1]

I’m on the maximum dose of a DMARD called Mycophenolate now and, although it is doing nothing for my lousy neuro symptoms it is definitely helping with the arthralgia/ Palindromic stuff.

[AgedCrone]

Palindromic means it comes & goes! Many people have painful swollen joints, make an appointment to see their GP, & by the time their appointment arrives all symptoms have disappeared.....hence they are sent away with no treatment.

If you have these symptoms try to take a photo of the painful areas,& ask your GP for a blood test.

People who are diagnosed with Palindromic Arthritis will be told it will either remain just that, it will go away completely, or it will develop into R.A.

[Beviejon1 in reply to AgedCrone]

I have both the pal never left.