Doing too much?

I feel like I've probably asked this about 6 times already, possibly in different ways.

This is still one of the hardest parts for me though.

Fatigue, pain, and absolute weakness/exhaustion.

I have been pacing myself, trying not to do too much, even when I feel "ok". I had a busy week, which is never good but today has been rough. I suppose it's caught up with me.

I have spent most of the day resting but thought I should do something with myself, had a small list of chores to do (take out garbage, feed animals, vacuum and put a load of dishes in). This is not a long list. But all I've done is take out the garbage and feed animals and I feel like death. I know know no one's ever died from dirty dishes or a hairy floor (dogs) but I don't have any help today and thought I could do it.

In these instances, do you push yourself? Or just figure 20-30 minutes up and around is all you can do for that day? I never know if I'm "hurting" myself one way or the other. By doing too little or too much.

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  • Hi cheshcat

    I am just the same so I reserve energy for absolute necessities and for two short times of exercise ie walking.

    This is in spite of getting Help occasionally from a son/friend.

    Thought I felt great last week, did the vacuuming, dusting and washed clothes one day; next, did the windows and glass.

    Tried a few gentle press-ups against a wall...

    Paid for it with exhaustion, swelling, pain etc but not a flare, just the price for over exertion!

    Limiting, frustrating reality, isnโ€™t it?

    I try to remain thankful for what I can still do.... breathe, think, get around a bit, you know what I mean. Small things but still able in those ways.

    Got to go, lunch is cooling.. ๐Ÿ™‚

  • Yes! I suppose we are all in the same boat. I just canโ€™t believe I canโ€™t go out a few days without paying dearly. It feels like Iโ€™m not โ€œhelpingโ€ my body by not being active and I miss doing active things but the reality is, I really struggle if I even try to do 1/4 of what I use to do. Itโ€™s depressing. Iโ€™m like a caged animal, pacing the fence line.....yep, fence is still electrified.

  • .

    Apologies ๐Ÿ™ , frightfully confused ๐Ÿค” , cheshcat.

    .

    โ€ข Thought fuzzy stuff on floor was newly installed 'carpeting'?! ๐Ÿ˜ณ

    .

    โ€ข Thought layer of soft fluffy stuff (accumulating on furniture/ sills) was a 'protective coating' . . . ๐Ÿ‘

    .

    โ€ข If 1 chore is to 'load up the dishwasher', isn't that obstructing the other chore: 'feeding the animals'? ๐Ÿคฆโ€โ™€๏ธ

    I mean, don't your 4-leggeds ๐Ÿ• ๐Ÿฉ ๐Ÿˆ ๐Ÿ 'self-feed' and 'clean' dishes simultaneously?

    [ ๐Ÿ‘… ๐Ÿฝ ๐Ÿ‘… ๐Ÿฝ ] ๐Ÿคทโ€โ™€๏ธ

    .

    โ€ข What is this "vacuuming" you speak of? ๐Ÿค”

    You mean, 'suck up' the newly laid fuzzy carpeting? ๐Ÿ˜ฏ

    .

    .

    [Sorry, cheshcat. ๐Ÿ™ It appears our housekeeping 'management styles'/ standards are worlds apart . . . ๐Ÿคทโ€โ™‚๏ธ ๐Ÿคทโ€โ™€๏ธ ๐Ÿคฆโ€โ™‚๏ธ ๐Ÿคฆโ€โ™€๏ธ ]

    .

    .

    ๐Ÿ˜‚ ๐Ÿ˜‚ ๐Ÿ˜‚

    .

    .

    As far as resting/ 'recuperating' if you're in deep exhaustion/ fatigue . . . ๐Ÿคค , your body is screaming ๐Ÿ—ฏ๐Ÿ—ฏ at you for rest. ๐Ÿ˜ด ๐Ÿ’ค ๐Ÿ›Œ

    Nothing you can do ('motivation-wise'/ 'positive thinking'-wise), is going to budge a depleted/ tapped out battery ๐Ÿ”‹. ๐Ÿ˜ต

    .

    Lovingly ๐Ÿ’“, guilt-freely, allow your batteries to recharge ๐Ÿ”‹โšก๏ธโšก๏ธ . . . ๐Ÿ”‹โšก๏ธโšก๏ธ . โ˜บ๏ธ

    .

    Gather your spoons ๐Ÿฅ„๐Ÿฅ„๐Ÿฅ„ ( healthunlocked.com/nras/pos... ) [after your 4-leggeds ๐Ÿถ ๐Ÿฑ ๐Ÿญ have licked ๐Ÿ‘… them, of course] by allowing your body to rejuvenate ๐Ÿ™‹ ๐Ÿ™† ๐Ÿ’ , then attempt chores. ๐Ÿ‘

    Oh so frequently "the spirit ๐Ÿ‘ป is willing" but the body just isn't able ๐Ÿ˜ž .

    .

    Why beat yourself up over it? ๐Ÿ˜–โ›

    [Of course, unless you're 'into' that 'sorta thing' โ€” self-flaggelation 'n all . . . ๐Ÿ˜ณ )

    I mean, why deny (or judge) any individual their 'unique pleasures' . . . ๐Ÿ˜ฏ ๐Ÿ˜‚ ๐Ÿ™ƒ ]

    .

    ๐Ÿ˜‚ ๐Ÿ˜ฌ

    .

    ๐Ÿ™ ๐Ÿ€ ๐ŸŒบ ๐ŸŒž

    .

  • Kai- thank you ๐Ÿ˜ you are so sweet and funny!! You are right. My body is screaming at me. Youโ€™d think Iโ€™d enjoy resting more ๐Ÿ™„ I need to reframe my thinking on resting. Iโ€™m sure itโ€™s helping me in some way, learning how to delegate and rest. Itโ€™s a weird feeling to literally not be able to โ€œpushโ€ your body, it just stops working and starts screaming!!! Gather my spoons, you are right! Thanks Kai โค๏ธ

  • .

    Yes, it is weird, cheshcat. ๐Ÿ˜ฏ

    Think it's something like 'watered down' version of Jean-Dominique Bauby ( en.m.wikipedia.org/wiki/Jea... ), "The Diving Bell ๐Ÿ”” and the Butterfly ๐Ÿฆ‹ " ( vimeo.com/41042478 ). ๐Ÿค”

    For a time, we 'inhabit bodies' that no longer 'do our bidding'. ๐Ÿ˜ง ๐Ÿ˜ณ ๐Ÿ™ƒ

    .

    .

    'Worst comes to worst' if loved ones ๐Ÿ‘จโ€๐Ÿ‘ฉโ€๐Ÿ‘งโ€๐Ÿ‘ฆ don't/ can't 'pick up the slack' (after you've nicely โ˜บ๏ธ requested help), then "tough ๐Ÿช๐Ÿช's". ๐Ÿ˜ฏ

    "It doesn't get done." ๐Ÿ˜ณ

    .

    [Have to 'make peace' โ˜ฎ๏ธ โœŒ๏ธ with that possibility (should it get to that point). ๐Ÿ˜‘ ๐Ÿ™ ]

    .

    .

    If/ when they tire of 'living in filth' ๐Ÿš , or 'going hungry' ๐Ÿ˜ฃ . . . they'll be motivated to 'pitch in'. ๐Ÿ‘

    [Kindly, don't allow yourself to become a 'martyr' โœ๏ธ ๐Ÿ› . You won't be doing anyone any favours by 'running yourself down' further. ๐Ÿ˜” ๐Ÿ˜ž Allow any (imagined) halo ๐Ÿ˜‡ to tarnish 'n slip; you can re-polish & re-tip it back into place ๐Ÿ’ซ when feeling better. ๐Ÿ™ƒ ๐Ÿ˜‰ ]

    .

    Allow yourself time to heal. ๐Ÿ˜Œ Allow those around you to learn the true meaning of responsibility, help, service, compassion . . . ๐Ÿ™ ๐Ÿ‘ ๐Ÿ˜Œ

    [They may not thank you (or appreciate) it 'in the moment', but down the road ๐Ÿ›ฃ โ€” whomever they 'partner with' ๐Ÿ‘ฐ๐Ÿคต โ€” those partners will be forever thankful for your instilling (early training), responsibility, care . . . into them. ๐Ÿ˜„ ๐Ÿ‘ )

    .

    .

    In meantime, allow yourself to focus energy ๐Ÿ”‹ โšก๏ธโšก๏ธon you ๐Ÿ‘ฉ .

    With limited energy โšก๏ธ, determine what is priority, what is critical? ๐Ÿค”

    (Improving/ healing ๐Ÿ‘ฉ seems a top priority? ๐Ÿค” )

    .

    .

    As you improve โ˜บ๏ธ , you can return to the usual 'give & take' balance โš–๏ธ , the natural ebb & flow ๐ŸŒŠ๐ŸŒ› reciprocity ๐Ÿค of household chores & daily living.

    In meantime, no shame, no burden, no guilt . . . of being on the receiving ๐ŸŽ end of loving kindness 'n care. ๐Ÿ˜˜ ๐Ÿ˜Œ ๐Ÿ™

    You've 'done' for them ๐Ÿ‘‰ ๐Ÿ‘จโ€๐Ÿ‘ฉโ€๐Ÿ‘งโ€๐Ÿ‘ฆ , now they can 'do' for you ๐Ÿ‘ฉ ๐Ÿ‘ˆ .

    .

    .

    Ring the bell ๐Ÿ›Ž when you need help. โ˜บ๏ธ

    Clang the bell louder {{{ ๐Ÿ””๐Ÿ”จ }}} if they're not hearing ๐Ÿ‘‚ you. ๐Ÿ—ฃ ๐Ÿ’ฌ ๐Ÿ—ฏ

    .

    .

    Aside:

    You might find this audio interview ๐ŸŽ™ with Matthew Walker (sleep scientist) interesting, cheshcat: Quality Deep Sleep: Physical/ Mental Restoration & Improving Health: healthunlocked.com/cure-art...

    .

  • You have so much good advice and wisdom Kai <3 <3

    You have well thought out and informative posts! My therapist said something similar, I'm doing not doing my family any favors by not letting them take care of me. Being forced by my body, I think I've just really resented my body for stopping to do my bidding!

    I hit a wall on Saturday when I posted and for some reason, this still surprises me. Now I'm still paying. I am a very slow learner it seems.

    Thank you again for taking the time to write down so much helpful advice and links <3

  • .

    No worries, cheshcat. ๐Ÿ™ โ˜บ๏ธ

    Think a lot of us are slow learners. . . ๐Ÿข . . ๐ŸŽ“

    . . . ๐ŸŒ . . ๐Ÿ‘“

    .

    Takes awhile โณโŒ›๏ธ (& a few hard knocks)

    .

    . . . ๐Ÿ˜–๐Ÿ”จ . . ๐Ÿ˜–๐Ÿ”จ . . ๐Ÿ˜–๐Ÿ”จ . . .

    .

    . . . (especially if we've thick skulls ๐Ÿ’€โ› . . ๐Ÿ’€โ›)

    .

    . . . to finally figure things ๐Ÿค” out for ourselves. ๐Ÿ˜ณ ๐Ÿ˜ฏ

    .

    ๐Ÿคฆโ€โ™€๏ธ ๐Ÿคฆโ€โ™‚๏ธ

    .

    ๐Ÿ˜‚ ๐Ÿ˜‚ ๐Ÿ˜‚

    .

    .

    Something like what Gloria Scott said:

    . . . "To the degree of your arrogance ๐Ÿ˜ค will be the degree of your suffering ๐Ÿ˜ซ ." ๐Ÿ˜ฏ

    .

    Perhaps substituting 'stubbornness' (?) in place of 'arrogance'? ๐Ÿค”

    . . . To the degree of our stubbornness ๐Ÿ˜  will be the degree of our suffering ๐Ÿ˜ฉ ? ๐Ÿค”

    .

    Maybe we can only learn at our own pace ๐Ÿ‘ฃ . . ๐Ÿ‘ฃ . . when we're ready? ๐Ÿค”

    .

    [ . . .and we wonder why we get headaches . . . ๐Ÿ˜‚๐Ÿ’ฅ๐Ÿ”จ ]

    .

    We've all done it ๐Ÿ˜ฏ (& continue to do it ๐Ÿ˜ณ ) . . . ๐Ÿ™ƒ

    .

    Our bodily limitations bring us back down to earth ๐ŸŒ though โ€” keeping us 'in check' โœ”๏ธ .

    .

  • Thank you so much Kai :)

    YES: So much this lol. I've talked about this with my therapist. It is arrogance on some level, thinking I'm the ONLY one that can do things or do things correctly. I just don't like being told what to do ;) - certainly not by my own body!

    . . . To the degree of our stubbornness ๐Ÿ˜  will be the degree of our suffering ๐Ÿ˜ฉ ? ๐Ÿค”

  • .

    ๐Ÿ˜‚ ๐Ÿ˜‚ ๐Ÿ˜‚

    .

    Of course, only WE know how to correctly load the dishwasher, Hoover the floor, take out the garbage . . . & of course, feed the animals . . . ๐Ÿ˜‚ ๐Ÿ˜‚ ๐Ÿ˜‚

    Everyone else's way just isn't 'good enough' . ๐Ÿ˜† ๐Ÿคฃ

    Our little universe ๐ŸŒŒ would fall apart if it was done any way other than OUR way . . . ๐Ÿ˜ฏ ๐Ÿ˜‚ ๐Ÿ˜ณ

    [And, gawd forbid, our body doesn't 'bend to our will' . . . ๐Ÿ˜ฏ .]

    .

    (Where have I heard that before? ๐Ÿค” ๐Ÿ˜ณ ๐Ÿคฃ )

    Oh gawd . . . so many of us are guilty. ๐Ÿ˜ณ

    [What's that? 'Type A's? ๐Ÿ˜ฏ ๐Ÿค” ]

    .

    What's the expression?

    . . . "Perfect ๐Ÿ˜‡ is enemy ๐Ÿคบ of the good โ˜บ๏ธ. "?

    .

    Oy vey! ๐Ÿคฆโ€โ™‚๏ธ ๐Ÿคฆโ€โ™€๏ธ

    .

    Funny, funny ๐Ÿคก humans ( ๐Ÿšซ ๐Ÿ‘ฝ ) we are . . . โ˜บ๏ธ

    .

    [Your therapist ๐Ÿ‘ฉโ€๐Ÿ’ผ๐Ÿ‘จโ€๐Ÿ’ผ would have a field day ๐ŸŸ with the lot. ๐Ÿ™ƒ ]

    .

  • Hi Cheshcat....what is light work for you could be a real slog for someone else.

    I decided a long time ago I must be really lazy because I achieved so little, but nowI know I was just trying to do too much altogether.

    I know this sounds really anal..but when I'm feeling really stressed I do NOTHING...except write a list....then as I gather a little energy I attack the list in priority order.

    I don't have any but I guess you gotta feed the animals...after that just one task at a time & i's surprising by not overdoing it how much more you get done.

    Of course I do live alone so I'm the only one who sees the sometime chaos..but if family members don't like...let them clear it up!

    Rest up until your entry picks up...it will pay off in the end!

  • Thank you <3

    Yes, I feel so lazy. It's like my purpose in life has been taken away and now I don't know what exactly that makes me? Like how am I contributing? If the tables were reversed, of course, I would never think anything of caring for one of my family. My middle daughter had knee surgery and mono one year, she was in bed for almost 9 months. She's 21 now and the main one taking care of the house and me. I suppose somewhere theres a good life lesson. I just wish I didn't feel so dependent.

    This is exactly what my mom says! She's had RA for 30 years. She said I'm just trying to do too much! Lower my list. She feels I'm still not resting enough. But I'm only doing like a quarter what I use to do. She just gave me the speech again last night, I frustrate her.

    Thank you again <3

  • Wonder what your "entry" is LOL....of course I meant. ENERGY,

    My excuse is I have a a locked Trigger Finger!

    But please do listen to your mom....if you preserve what energy you have, you'll wake up one morning with just a little bit more...until you feel you can do a bit more..but push yourself & you'll end up in bed all day!

    Believe me that is true, so plug In those earphones & listen to whichever book you have always meant to read. I love my Kindle, but right now I can't hold it!....I'm dictating this at my iPad!

    Rest young lady!

  • Thank you โค๏ธ

    Iโ€™m having trouble typing because of two fingers that donโ€™t want to work correctly. Itโ€™s hard to type correctly without all the fingers working as they should!

    It sure does feel like punishment when I over do it! Youโ€™d think that would be clue enough.

    You all never fail to make me feel better about being stuck in bed โค๏ธ

  • Cheshcat

    It is a tightrope isnโ€™t it ๐Ÿ˜ฅ

    You just do what you can - guilt is a wasted emotion.

    It is frustrating - I do what is Really important ( ie paperwork, laundry ) &

    do what I can for the rest . Somedays -ok lately -I have had a lot of lying on the sofa .

    It is what it is - super lucky to have my husband . Of course - I fake it when we go out .

    Does help to break tasks down I think.

    Protestant work ethic ( thanks mum & Dad ๐Ÿ˜) & RA do not mix for sure .

    Feel well soon ๐Ÿ˜˜

  • Thank you <3 - I suppose at least I'm not alone in all this, this board is very helpful.

    Yes, paperwork for my business is #1, then I work down my short list but some days I don't get far!

  • As they say - less is more ! ๐Ÿ™ˆ

  • Right now I really understand where you are coming from...I just ran my hand through my HAIR for goodness sake & my locked finger got caught & it really was absolute agony. At times like this I honestly feel like giving up!

    But we don't do we cheshcat?

    I've been cursing this disease for 18 years now.....& I just have to find my way around everything it throws at me.....as you will once you get the right meds for you!

    I'm sure your daughter & your mom just want you to rest so that they get the real you back & you can only do that by taking it easy.

    I was going to paint a fence (only a little one) today.....but finger won't let me, so I will sulk instead & with very bad grace do whatever I can do with my left hand!

    Rest!

  • <3 - it's so hard, having choices taken away, how I defined myself is now gone. I'm trying to look at it another way, just entering a different stage of life, I'm sure I'll figure out but it's a bit of bumpy ride along the way! It's a good reminder for when I do get medications that work, to keep on resting!

  • No your choices aren't gone for good cheshcat, things will get better when you get the meds that suit you.

    It can be a long old process but most of us get there eventually.

    In the meantime, just let your mom & daughter know that you know they mean well when they tell you to rest ...but you are allowed the odd rant occasionally!

  • Good advice :)

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