Little update for those who would like to know. - NRAS

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Little update for those who would like to know.

Ccrowlu profile image
15 Replies

Today my legs are hurting so bad I almost don’t want to get off my bed right now. I can’t take any extra pain killers and I’ve never been in this much pain since my RA pain started way back when and I am all alone for the whole day until my dad gets home from work. I tried to take the garbage out but my legs gave out as I got to the door... I don’t want to call my dad because my knees have given out before and he’s at work. And I can’t call my mother because she is at a funeral. Can anyone give me recommendations to ease the pain?

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Ccrowlu profile image
Ccrowlu
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15 Replies
Zip1 profile image
Zip1

Hi, poor you. Sometimes heat can ease the pain, can you try a hot water bottle?

Ccrowlu profile image
Ccrowlu in reply toZip1

Could you explain how to do that?

SoulmanPaul profile image
SoulmanPaul

Hi. Assuming you can get in and out safely maybe a hot bath would help?

Ccrowlu profile image
Ccrowlu in reply toSoulmanPaul

I sadly do not have a bath.

SoulmanPaul profile image
SoulmanPaul in reply toCcrowlu

That's a shame. I guess standing for long in the shower isn't an option?

Ps. I believe hot water bottles are an English thing...not widely available in USA.

Ccrowlu profile image
Ccrowlu in reply toSoulmanPaul

Makes sense. I’ve never heard of hot water bottles.

SoulmanPaul profile image
SoulmanPaul

I found the following online-might be of use.

healthline.com/health/pain-...

Ccrowlu profile image
Ccrowlu in reply toSoulmanPaul

Thank you I will definitely try that

SoulmanPaul profile image
SoulmanPaul in reply toCcrowlu

You're welcome. I hope it helps your pain!

Eiram50 profile image
Eiram50

With respect, if things are so bad, and it sounds like they are, for you, I think you need to bite the bullet and call your dad, or another responsible adult for help. They then need to get you the medical help you need, whether that means presenting at your local ER or calling a doctor ?

Be safe

Marie

Call 911. You need help. An ambulance will come and take you to the ER. When you are there tell the doctors about what is going on with your parents ignoring your RA. Tell them your fears of your parents being mad at you for calling 911. The medical profession is there to help you. You are being neglected and it's time for the social workers to get involved. Even if this means living in a foster home. You may become a ward of the State and if this is the only way you can get help, then it is a positive thing. A foster family will be obligated to make sure you get all the medical attention you need. Maybe this will open up your parents eyes. If it doesn't then so beit. You have a full life ahead of you and it is a damn shame what your parents are putting you through.

Love & hugs,

Sue

Ccrowlu profile image
Ccrowlu in reply to

Thank you. I would like to let you know that the pain has subsided and my legs haven’t given out since. I will be talking to my dad about it when he gets home in a few hours.

in reply toCcrowlu

Take care of yourself. I'm a parent, and I really do feel for you. Lets hope your dad understands how dire your situation is.

Lots of love to you

Sue

Ccrowlu profile image
Ccrowlu in reply to

Thank you so much! I’ll try to make him understand

Oh i feel for you. Being left to cope with this by yourself at such a young age, it's heartbreaking. I really do hope that someone will eventually try to understand your pain & try to offer the help you so desperately need.

All the helpful advice that you're receiving on here, sounds like it's helping you, for a start. But you won't be ignored on here, that's for sure.

Please keep us updated.

Virtual hugs from the UK

Ruth x

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