I am all over the place - back up to 20 mg steroids and can’t stop crying ....pushed myself at work in last 2 weeks . I had 3 hideous flare ups and forced myself to go to work . Now I am a nervous wreck . Got an emergency appt at hospital on tues- and tho I should be happy, I am SO ANGRY with Kings college hospital cos they left me without meds for 6 months last year and took 8 weeks to give me an emergency appt!!!! Crazy so now I don’t qualify for full time sick pay as I used it all last year and absolutely terrified to take time off for flare ups . Well that’s completely unsustainable isn’t it???
I am so stressed about money - I am paying a fortune for all my supplements etc !!!!!! Anyone got any advice ?! Please!!!!! Xx