Joints all swollen with fluid but anti -ccp normal now despite no treatment

[Helzbells]

I'm getting very confused my symptoms are worsening I've got obvious swelling now in my ankles as well as my knees and elbows and fingers yet my anti-ccp has gone to 3.4 . I have been fighting the hospital for any treatment as I'm allergic to dmards and I'm now worried this means I will get nothing at all ever. I am getting more and more immobile as the fluid in my joints which everyone can see is getting worse and worse and the pain is becoming unbearable. I no longer no what to do

[ITYFIALMCTT]

Did your consultant not consent to pain patches or anything else that would assist you? Any explanation as to why not, if not?

This is no help to you but I hope that your consultant is considering publishing you as a case study that explores why blood markers can be in stark contrast to flagrant swelling and fluid visible on MRI/ultrasound etc.

I'm aghast at the problems you're experiencing when you plainly need treatment. I don't know if the thinking is that treatment can only influence the things that are measured - but why the fluid in the imaging doesn't count is beyond me.

[Amy_Lee]

Dear Helzbells,

My hands and legs were swollen too but I was negative anti-ccp and RA factor. I was told I was/am seronegative RA, that did mean I was/am not a RA patient.

I am very sorry to know that you are allergic to DMARDs and I hope your rheumy can do something for you to capture the golden period of recovery.

Amy

[Juliachoo]

I feel fobbed off too! Really struggling with my hands , neck, shoulders, knees & feet & am told that I now have Fibromyalgia? What the hell? The mind boggles are you in Nottinghamshire or is this happing in a different area? X