New to RA June 2017: "Well this stinks! I don't want... - NRAS

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New to RA June 2017

Rockinrobin profile image
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"Well this stinks! I don't want it!"

If I signed up for this somehow, how do I get out?! Haha I am an essential oil junkie and live as chemical free as I can. This put a whole new twist on chemicals for my body with methotrexate. Trying to learn as much as I can about the disease and medicine and how EOs can support my health through this.

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Rockinrobin profile image
Rockinrobin
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Tinkerbell5 profile image
Tinkerbell5

Snap I'm also interested to find out more so hard to find groups etc for help but this group is a god send what arthritis do u have I'm ccp positive x

stbernhard profile image
stbernhard

Welcome to the club. I was diagnosed in 2009, but have been in remission( near to normal life without major pain) for three years now. The NRAS website and their help desk are probably the best way to get information about all aspects of living with RA. If you haven't been in touch, I'd recommend it. All the very best.

Beviejon1 profile image
Beviejon1

Lol I've been saying the same thing for 24 years!Get me out of this!Apparently we signed the wrong paper!😁

Welcome to the club.

I think of inflammatory arthritis as a piece of dog poop that I accidently stepped on while walking in the park....I've spent the last 4 years trying to scrape it off my shoe. Maybe I should buy a new pair of shoes? lol

LadyL0u profile image
LadyL0u

Yup, it definitely does stink! And yeah, I also didn't want to go down the heavy 'chemical' route, but when you've given everything else a go & you're just getting worse, sometimes you've just gotta 'bite the bullet' and give the meds a shot! Along with the condition getting worse, my RA doc stated that I was under-treated, which helped snap me into reality & took the plunge with Biologics. A few months later I started to see/feel (more importantly) the benefits and felt stupid for waiting so long! Good luck with whatever route you go down... :)

Spring2017 profile image
Spring2017

As my consultant said... "it will get worse without treatment. And if we have got it early enough you might be one of the very very few that go into remission."

"However you can try all the fairy dust, voodo, Hogwards Magic you want and then come back."

"I will still be here for you. I understand the desire to try other options.

For some they say a lifestyle change is what was needed. But the science in this will say that the RA and the immune system can not be treated by juice, extra portion of vegetables or any herbal remedies." (Not my personal opinion but Rheumy.)

I'm still exploring what food my body reacts too while on medication"

But Rheumy said " This medication is poison! I will not lie to you."

But you will have wasted valuable time that we could have used to stop your immune system from self destructing your joints.

Or at least delay the inevitable...

So I sat...and sat some more and looked and thought... after what felt like forever (5days).

I spoke to my husband as he is very much in for the ride and wanted me to try and stop the development as soon as possible.

I looked in his eyes and saw how scare he was for our life together.

He knows that to take on this kind of medication is life changing. After all his mother has survived the big C 3 times.

Twice when he was a young boy and then just before we married.

He said "I want more years of us doing things"

So I am taking my medication not only for my pain and with the hope of going into remission, but for my family and the man that loves me.

You will find your way and your own reasons for doing what you chose.

So good luck.

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