Advice/Tips wanted please: I have recently been... - NRAS

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Advice/Tips wanted please

RAstrong profile image
9 Replies

I have recently been diagnosed with RA I have a really hard time taking medication of any kind as my stomach can not handle it. I am quite scared of the medications I am going to have to be taking and their side affects. What kind of relaxation methods do you find work for you or how do you releive stress as this is a big trigger for me. I also need help trying to get my husband to understand what I am going through he needs to realize I can't do it all by myself anymore. Any advice or tips on just living with RA and what has worked for you I am willing to try anything that may help. Thank you all so very much.

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RAstrong profile image
RAstrong
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Cal48 profile image
Cal48

Doctor Hilary jones.Ultimate Relaxation.Really soothing as you can use visualisation. I think we are all scared about our meds but you have to persist and try to know as much as you can so you can talk to the care team if you have problem. I was frightened but I knew I needed to get help from meds. Good luck.💐

RAstrong profile image
RAstrong in reply toCal48

Thank you very much for the information. I will definitely have to have a listen. Take care

gwynedd profile image
gwynedd

Morning RAstrong

I can sympathise with you on having tummy issues. I now inject Methotrexate which bypasses the stomach and causes much less issues. As soon as my rhuemy team knew I was having nausea ect.. with the tablets they switched me to injections. Maybe this is something you could discuss with yours. Good luck 🍀

RAstrong profile image
RAstrong in reply togwynedd

Thank you very much h I will definitely discuss this my Doctor on Wednesday.

gwynedd profile image
gwynedd

Oh, I also meditate and use mindfulness techniques to help with the emotional side of my disease, which has helped me enormously. If you can find a good mindfulness course near you I wholeheartedly recommend it. As to the hubby... It can take a while sometimes for partners to understand, I gave mine websites and read out posts from here to help him grasp what I was going through.

RA22345 profile image
RA22345

Most of the drugs we are treated with have been around for a long time now and there are hundreds of thousands of us taking them. Many of the side effects are manageable and many people had no side effects at all and only experience the relief they bring. So, yes read up on what you are prescribed and do keep explaining to your medical team what has happened to you before but don't rule anything out before seeing if it helps. Wishing you all the best.

RAstrong profile image
RAstrong in reply toRA22345

Thank you for your support oh I have been in so much pain these past few months and unable to sleep or eat I am willing to try anything to bring some.sense of normalcy back into my life before I lose my mind

RA22345 profile image
RA22345

Try to stay positive, you do need to trust someone in your medical team. I hope you can.

RAstrong profile image
RAstrong in reply toRA22345

I have an amazing family physician I have had for 25years and have heard a lot of wonder things about my Rheumatologist.. I don't have a problem speaking up about my health issues or asking questioms. I have had kidney problems all my life .

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