Weight LOSS after any RA med??: Just wondering if... - NRAS

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Weight LOSS after any RA med??

8080 profile image
8080
20 Replies

Just wondering if anyone has experienced a weight LOSS on their biologics, or on any RA med??

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8080
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20 Replies
LizzieR profile image
LizzieR

Not me! X

8080 profile image
8080 in reply toLizzieR

That's what I am afraid of, Lizzie.

LizzieR profile image
LizzieR in reply to8080

Hi,

But I haven't put any on either. Have you lost a lot? I've read that's it can be a side effect to lose or put on weight- not much to worry about as long as bloods OK. Though if it's worrying you maybe check with your doc?

8080 profile image
8080 in reply toLizzieR

No, I need to LOSE weight! I can't afford to take a drug that has a high percentage of people who have GAINED weight.

Thank you all for your responses- you have helped me a lot in making.all the decisions that come with this disease. Love to all! Hopes for a pain-free Easter!! xoxo Chris

Janesidney profile image
Janesidney in reply to8080

Me too! I put on 14 kilos with previous medication and haven't lost it.. My activities have increased and im 4 weeks into benepali but I can just feel that I've grown lol HELP

in reply toJanesidney

I could of wrote your reply...14 kilos equals 30 pounds...I've gained 30 lbs!! eek

Jacki08 profile image
Jacki08

Hi--- I lost about 10 lbs when I first started on meds. 😊

in reply toJacki08

I believe I found your lost 10lbs...can I send it back to you Jack08?...

Leflunomide, lost over a stone pretty quickly. Since PsA came to stay I have tended to lose weight rather too easily to think of it as a healthy thing to happen, but not to that extent.

Matilda_1922 profile image
Matilda_1922

I've had weight gain since starting RA medication

8080 profile image
8080

Loss or gain elf?

LindaDee profile image
LindaDee

Weight gain of 10 lbs since beginning Cosentyx 10 months ago. When MTX was added I gained another 5 lbs in 2 months, have since MTX and lost the 5.

miss-otis profile image
miss-otis

I lost half a stone in 3 months on methotrexate. I'm now on hydroxychloroquinine and sulfasalazine instead (since December), and my weight has stayed the same. I'm lucky in that I can still exercise daily,and I try to ensure I have a good diet x

Jefflin profile image
Jefflin

I lost 8 kg on leflunomide. I've put it all on again now I'm back on Prednisone though.

Lucy11 profile image
Lucy11

Prior to my diagnosis I lost some weight and was told that it was due to the disease itself. I'm quite lean and after I started MTX I gained only a few pounds. I'm on Orencia now and haven't gained any additional weight. The only medication I know of that causes weight loss is Arava ( Leflunomide)

AgedCrone profile image
AgedCrone

I lost nearly two stone in a few months on Leflunomide. Just didn't feel hungry & I still don't have much appetite ..went from a size 12/14 to 10/12.

Pity the medics/nurses don't warn about this....I would have made more effort to make sure I ate ....it's cost a fortune buying smaller clothes!!!

Bully915 profile image
Bully915

Only weight loss ive experience when have a bad flare up and cant move dont eat or drink for about a week

Gnarli profile image
Gnarli

Oh bless you! I seem to have the opposite problem. I lost about seven pounds during the flare that lead to diagnosis and still haven't regained it all. Each time the weight starts to go up something happens and off it comes again. I'm turning into a human twiglet and at my age that's not good news. This ghastly disease just goes on giving!

NicolaP profile image
NicolaP

I've been on Simponi and Sulpha since Sept 2015, having had issues with MTX for some months prior. I put on half a stone between July 2015 and March 2016, after a dose of prednisolone in the July for a severe flare as the weight started climbing in the August. Since March 2016 I've lost 2 stone although I've plateaued since Christmas around the same weight. I have to admit its not been down to an improved diet, I just don't seem to be eating so much. I needed to lose a lot of weight as I was very overweight when diagnosed in Nov 2010 and put on a lot more being on prednisolone for 13 months. I now need to lose just over a stone to get down to a normal weight, something I've not been for almost two decades so there has been some positives.

meanoldtomcat profile image
meanoldtomcat

I've been on prednisone since diagnosed... On wk6 of mtx after reaction to plaquineiland had to stop it. I have continued to lose. At first I lost 2-4 then gained it back but now on mtx... I have decreased appetite , nausea and and sore mouth so I believe that's a lot of why I keep losing. At diagnosis I was bout 140. Now down to 123 and still dropping. But I stay active to keep my joints mobile as possible.

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