New to Humira

[mariama2603]

I started my Humira treatment today for ankylosing spondylitis after battling with it for just over 15years. Would love to hear about peoples experiences, dos and don't, to get myself prepare. There seems to be a lot online to read but I strongly believe in 'expert by experience'. Would love to hear from you.

[woodstar1]

Don't take it myself for my RA but I have a work colleague who started it 2 years ago for ankylosis spondylitis, its changed his life!! He spent loads of time off work due to it and things didn't look good, he was only 38, but that drug turned it all around for him. Hope it works and suit's you too.

All the best.

[Hidden]

Hello

Welcome! I've been on humira for RA for 2.5 years and it took a good 6 months to feel the full effect. I've heard of people having results much quicker but mine was a slow improvement and I continually slowly improved for up the first 6 months. I don't really have any side effects, except for being very tired the day after the injection. It's been a good medication for me. The injection is easy; limited pain and easy to do.

I'm happy to answer any specific questions.

[mariama2603 in reply to Hidden]

Thanks for responding. I sure will be taking you up on your offer in the near future. I think one frightening concern i have is the effect it has on the immune system as i have been told as i tend to pick up things easily. I can only hope for the best and try protect myself as much as possible.

[Gigi71]

Hi. Have been on Humira for 8 years, for RA, it has been a wonder drug, regarding pain and inflammation, not perfect, but then we are all different. I noticed a difference within 3 months of taking it. They have changed the formula taking out the additive they caused a sting when injecting the pen. Good luck.

[Mhairi54]

I was diagnosed with Ankylosing spondylitis about a month ago and am about to be started on a biologic of some kind (not been told which one yet) so am following this post with great interest!

[TerrilouiseS]

Hi Marima,

I started taking Humira in March for PsA and it has literally given me my life back. It started to take affect within a few hours and gradually improved my symptoms over about two to three months. I would say that now after 7 months it has also reduced swelling I had that was persistent in some joints.

Do find an injection time that suits you, I find I may feel a little sleepy the next day. I also get a slightly poorly tummy the day after, but that really is it.

I had a sinus infection when I first took Humira and like you I pick everything going up. Turns out I haven't had as many colds etc as I thought I might. Good personal hygiene and staying away from people with colds is the best thing to do.

I do get a swollen itchy injection site which I've learned ice and an antihistamine can help, I checked this out with my rheumy who says this is fine.

I wrote a post on my wonderful life with Humira not long ago, i have a lot to thank it for!

Best of luck xx

[mariama2603 in reply to TerrilouiseS]

Many thanks for the response, it gives me hope as I have had terrible regular flare ups in the past few years which most times left me not been able to even get out of bed due to severe pain.

[Jacki08]

Hi --- I started on humira in April after problems with methotrexate.I have the pen injection and don't feel a thing. Slightly dodgy tummy the day after but nothing major. Good luck😊

[kourky]

is super and no pain at at all i am on 2 years now and i fave no problems and i working 50 hrs a week on my feet hope is work for you to