So sorry, every time I come on here I seem to be whining!
I mentioned before that I got an awful seething depression after starting treatment in May. I was given a IM depot steroid and started on sulfasalazine. after three weeks I developed a cough, and a speedy pulse, and thumping heart and tremor. I was seen by emergency doc in May and put on antibiotics just in case.
However, I continued to feel rubbish, with all the above symptoms with the addition of numb feet and generalised pain. In August my infection markers started to creep up again, so I was given another steroid shot, and my sulfasalazine was increased to one gram three times a day. I felt worse!!
I suspect that the issue has been the sulfasalazine and not the steroid as I initially thought. To cut a long and boring story short, I have stopped taking the sulfasalazine because I felt awful. Within four days the depression began to lift, as have some of the other symptoms. I do still feel awful in the mornings, and there is some tenderness in my Achilles, but that never went even when on sulfasalazine! In fact, I don't feel that the sulfasalazine was doing much other than cause side effects.
I have sent a letter to my rheumatologist explaining, and I have arranged an appointment for November (soonest I could get!). Talking to my GP is a bit like banging my head against a brick wall. I did try and explain things to her a week ago, but didn't express myself well. The doc told me that the steroid should work for up to three months, and that I shouldn't be in pain. If that is correct then I should be OK until I see the rheumatologist in November. I am certainly better of the sulfasalazine, I just hope I don't get worse than I was on it now I have stopped it.