Worried : Went to see my neurologist Wednesday got the... - NRAS

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Worried

Hurtalot profile image
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Went to see my neurologist Wednesday got the news that I have a whole in my hart. It don't seem to slow me down but worried if my rheumatologist that I go to see will try to move my meds up.the ones I'm on now is not helping my rheumatoid arthritis

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Hurtalot profile image
Hurtalot
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allanah profile image
allanah

Hi I believe lots of people are born with hole in the heart and some don't affect them at all.

If you don't feel the meds are helping then you should chat with the Rheumy team about your pai, take pictures if you can of any swelling . The consultant will know which drugs will be safe for you xxx

Hope you feel much better very soon X

I was born with two holes in my heart was operated on at the age of 7 one of the first set of people to under go heart surgery 1962 my mother was told I would only live to be 14 then later in life I was told not to have children I had 3 I now have 5 grandchildren and 1 great granddaughter and have ra oa and fibromyalga it not going to beat me ,hole things go well for you

Hurtalot profile image
Hurtalot in reply to

Thank you .I was wondering if haven a whole would stop me from getting the right meds for my rheumatoid arthritis.

medway-lady profile image
medway-lady

Don't worry the consultants do talk to each other so just see what they say. Best of luck xx

phil_54 profile image
phil_54

Hi

I was diagnosed with seropositive RA 3 yrs ago and i thought that life would never be the same again but once the consultant got the meds right this condition has been so much easier to live with i still have good days and bad but i find the best form of support is from family although the medical pros are very good in most cases and since joining this site i have learned so much more by talking to people who suffer the same conditions and they understand more than anyone, Hope everything works out for you and good luck.

Matilda_1922 profile image
Matilda_1922

I was diagnosed with seropostive RA earlier in the year. I continue to have problems but it's early days.

I find this group extremely helpful and keeps me sane.

I also realise there are people with RA far worse than I am

Have a lovely day

I'm off to work

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