Well here i am after having a crap morning so far. I got up with a very sore eye which i believe is due to my Sjorgens,it has fwlt like there is something in it. so it is very damp and watery. Everything i seem to touch goes pear shaped. I managed to make my f/book page smaler then hugs and it took me ages to fathom it out. My anaemia is still giving me a good kicking and my index fingers are sore and swollen as well,but would you believe my ra bloods are very good. So if that is the case why do i hurt so much,oh yes i have fibro and cfs so that must be it (being sarcastic here).
Please someone upstairs give me a break.xxxxxx
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sylvi
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What a pain. Since I have been posting on this site you have been really kind and caring in your replies. Sorry I can't make things better for you but hopefully by this stage in the day yo are feeling a bit better and enjoying those beautiful roses. I am out in my garden with a coffee - bit of late afternoon sun. Shame the neighbours appear to be doing a bit of spot welding and drilling!
Hi pal, some days it is hard to find the joy..... Thinking of you, feeling very similar, but let's keep hoping for remission. It is a long time coming , 2 years!, but without the hope we might give up. Loved the flower picture, a joy in itself ? Lesley xx
Sylvi, some days are so hard I know, but we have to stagger forward somehow. Hope your day improved a bit for you. It's been hard work for me as well today, neck, back and feet so bad, then Kens decided to sit and watch tennis with son, now it's the football looming, thank goodness it's the final tonight !! I'm just finishing ironing, then I'm going to watch telly in bedroom, while they have match on.
As regards bloods, when I saw rheumy 5 weeks ago, my CRP was 22, ESR 28 and he said it was all OK even though numbers have been creeping up again. I queried it as to me being in such pain, he just shrugged his shoulders. then he said he would refer me to physio again, on and on it goes, for all of us really, it's hard. Thinking of you xxxx
Don't you wish they would listen to us and not just go on the blood results. It makes you think they don't listen to us and maybe they will miss something serious and god forbid something life threatening just because they go off the bloods. I am glad i have a gp that will listen to me and he has said all he can do is manage my condition which is honest of him. He has ordered a mri for my back as i have been suffering from that as well.xxxx
Sylvi, seems Rheumatology around UK is very mixed, some good, some bad. They should never just go on bloods,,but I'm afraid mine does and sounds like yours does as well !!! My GP is very supportive and understands so much about RA. I said to him a while back I wished I could have all my treatment off him but he said GPs are not allowed to prescribe our drugs, has to be rheumatologist.
Hope you don't have to wait too long for MRI, it will certainly show up any problems with spine/neck etc. I had another one on my neck in spring. Neck has deteriorated dramatically since last scan and I have cervical stenosis which is causing the terrible pains thru arms and hands. Glad to hear you're feeling brighter today, don't get going mad doing too much though !! Have you tried fybogel drinks for constipation ? You can get them on prescription. Xxxx
Wishing you better, beautiful flowers, I can see where you get the hair colour inspiration from😄💐. Sending prayers and hugs. Put kettle on, have a brew, treat yourself to your favourite biscuits, and hopefully, tomorrow will be better.
Well fingers crossed everyone,but i feel brighter today than i have felt for a few months. I feel that i could do something today. I have a appt for the weight clinic this morning so here's hoping on that score. We are going to chat about the anaemia i am suffering from and what i can do about it and the constipation i am getting from the tablets.
Thank you all very much for keeping me going when i have felt like giving up and there have been some bad spells when all i have done is cry. So fingers crossed. I love you all my ra warriors.xxxxx
Hi Sylvi. Sorry you are still struggling with the pain. I am glad that you have this forum to at least let off some steam. I know it doesn't help the pain but a problem shared is a problem halved. Hoping you soon feel better. x
Good morning Sylvi, I am so sorry you are in so much pain. I have had RA since 1987 and also have Sjogrens and Bronchiestasis (if it comes free with RA I get it!) Have you tried bathing your eyes with dilute bicarbonate of soda ( one teaspoon to one pint of cool boiled water). I find this helps when my eyes are itchy and it feels like I have an eyelash in it. Gentle hugs x
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not a good day after the bike pic i put up would give anything today for a body like that
Whats wrong with me? not a thing now apparently!
Hell continues without a break
Give us a break
give them a break
