Quote of the week

[Ruby_sommer]

After this weeks weighin with dexascan because of steroids. Have dropped from 40kg to 38kg in three weeks.hubby said can,t understand it.it,s not like you,re sick,you just have a bit of a condition! Arrrrrrrrgh. Anyone else have to put up with this.?😳

[lornaisobel]

My husband doesn't even speak to me because I'm now 'useless'

[gerry58]

I am leaving my husband and going it alone. He doesn't understand what's going on. He says I'm lazy because I find it difficult to do normal things in the house that I used to do like vacuming, mopping the floors, I suffer really badly with fatigue I work full time he works two and a half days a week and won't help with the house work but when I mention cutting back on hours he gets all stressed about money. Sorry this is turning into a bit of a rant.

[npkb in reply to gerry58]

So what does he do the other 4 and a half days?? Saying no more or I will rant too . .

[Amy_Lee in reply to gerry58]

Poor gerry58,

Just leave him and take good care of yourself. Such a person not worth to be with you.

My ex cared for no one hence I divorced him. I decided to raise my kids all by myself the way I wanted them to be. I am doing perfectly fine today except that I am a RA patient but I am in remission now.

We are here with you. Just share your feeling with us if you need to. This is why we are here for to support each other emotionally and morally.

[Fra22-57]

When chatting to someone in village she said "oh we get these things as we get older" cheeky bitch I am only 58 and she was about 70.Ignorant.Any age can get things

[npkb]

I do think it's very hard for partners. I know my hubby thought I was "putting it on" and got quite irritated in the early days. Looking back, it would have been helpful if he had also attended a hospital appointments with me and talked to the rheumatologist and the rheumatologist nurses about the implications of the disease.

Partners need to ask themselves "Why would my happy, energetic, active partner suddenly CHOOSE to become tired, miserable, and unable to do the simplest things. Who chooses, as a 25yr old, to struggle to sit in a chair and need help to get out again as though in their 90s?"

My hubby thankfully hung on in there, and vuq, 40 years on, is patient, caring and is my rock.

It does seem men find it much harder to understand and accept. Funny how the same men are often totally wiped out and incapable when they get a cold - or "man flu"!!

[EmmaS-NRAS NRAS]

Hi all,

The emotional impact of RA and particularly its effect on relationships isn't talked about much unfortunately. We always encourage partners to learn about the disease and a few years ago we published a booklet called 'emotions, relationships and sexuality' which we hoped would encourage more to talk about this difficult topic.

nras.org.uk/publications/em...

It may also be helpful to have a couple of our 'what is RA' cards to hand as it explains the disease in simple terms and is particularly helpful for those confusing it with other forms of arthritis. nras.org.uk/publications/wh...

Don't forget the NRAS Helpline is also here if you need to talk anything through - 0800 298 7650 or email [e-mail]

Kind regards

NRAS-Emma