Introducing myself.: Hi all, I've replied to a few... - NRAS

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Introducing myself.

Lesley_ann profile image
7 Replies

Hi all, I've replied to a few posts but not actually introduced myself. Think I've done things back to front, that's me actually! 

Anyway my name is Linda,I'm very new to not only these kind of forums but also social media so please bare with me as it takes me ages and several attempts to post ! My main reason as been to find other's in similar positions get some support and maybe even find a local support group. I was diagnosed 14 years ago with rheumatoid arthritis, I spent a couple of years in a really bad place hardly mobile and needed personal care until in 2006 I started on anti TNF it gave me back my life! Unfortunately last year I was diagnosed with pulmonary fibrosis and then fibromyalgia but trying to stay positive.I am so glad that I found this site and hopefully will make some friends and allies against such deliberating likenesses.Linda

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Lesley_ann
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7 Replies
sylvi profile image
sylvi

Welcome Linda, i have ra/fibro/cfs and other diseases. I am 60yrs old and have ra for 13yrs and fibro for about 4yrs and cfs for 2yrs. I have multi coloured hair and despite how bad i feel i refuse to give up.xxxxx

beeckey profile image
beeckey

Welcome Lesley Ann I have had RA for about the same amount time like you i had a terrible time could do nothing for myself i am on Biologics and things got a bit better not great but seeing consultant next month as they are not working well enough said there is one more i can try so i hope it works you have had a bad time so glad you have found us hugs from me Betty

popsmith1874 profile image
popsmith1874

Hi and welcome we are all in the same boat I've only had this disease 2 years and am on mtx sulfazalasine  and hydroxocloroquine but they are not controlling it well enough so I'm waiting to go onto a biologic and I've also got oa since getting RA, so here if your down people will soon perk you up

allanah profile image
allanah

Hi Linda great to see you posting. Read the Nras website as it's got loads of info if you haven't already! 

I had RA sero negative and grow fibromas on joints X all ok tho ! 

nomoreheels profile image
nomoreheels

Welcome Linda! I hope you find us a helpful lot, I'm pleased you're doing better & sure being diagnosed some while you'll be able to swap plenty of experiences. You may find an NRAS support group reasonably close to you, this link lists where they are & the admins post where & when each are regularly nras.org.uk/groups.

Lesley_ann profile image
Lesley_ann in reply tonomoreheels

Thanks for the link and really appreciate the reply.

Sheila_G profile image
Sheila_G

Hi Linda.  Welcome.  I too have been diagnosed 14 years and am proud of the fact that I won't go on facebook or twitter.  I would rather speak to my friends!! However, this site is different.  We are all in the same boat albeit some in rowing boats, some in huge warships.  We exchange all kinds of imformation, advice, problems etc on here and everyone is so supportive. We all have ups and down days and need to share them with people who understand what we are going through.  Looking forward to speaking to you again. Best wishes. 

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