I'm on 28ml MTX 400ml Hydroxichloaquin (spelling wrong)
and 40ml Leflumanoide and painkillers
I've tried Humera and Embrel really bad side affects so now they want to start me on infusions as you can imagine I'm a little aprenhensive I'm on hold at the moment as I've got recurring ear infections so they need to be cleared up
Every time I'm due to start I get an infection
Can anyone tell me if they have tried this and any side affects
Hope your all as well as can be expected
Big hugs to all
Gerrie xx
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Ellioteva
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Do you know the name of the new drug they want to start you on? Enbrel and Humira are what are known as biologic drug treatments and there are currently 8 of them. A number of them can be given as infusions. I have put a link to our information on biologic drugs for you to look at and a link to the section on our website about medication:
Hi Gerrie...when I started feeling "off" i didn't at first connect it with Mtx......I put up with feelin bad for ages...in the end I wrote down all my symptoms & got pan emergency referral to my rheumatologist who took me off it immediately.
I " seem" to be settled on Leflunomide, but I sometimes get the same symptoms I was getting with Mtx......so it's a waiting game.
I have found it's a good idea to sit st home &'write down exactly how you feel the drugs are affecting you. I get tongue tied in front of doctors & when I come out if a consultation I kick myself because I have forgotten to mention all the symptoms.
I.m using the dictaphone app to write this as I have just had surgery in my wrist. My diction must be very bad.....Methotrexate printed out as "my tracksuit"!!!
I do hope you find a drug regime that helps you very soon . I don't recommend coming off anything without medical advice. When I stopped Mtx I had the worst flare I have ever had.......even had to cancel a holiday I was so unwell.
All,OK,now though....Kathy
PS I didn't know Leflunomide came in liquid form either!
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