Weight loss: Hi to all fellow suffers out there,has... - NRAS

NRAS

37,273 members46,139 posts

Weight loss

Rosebaywillowherb profile image

Hi to all fellow suffers out there,has anyone experienced dramatic weight loss?.Iam on tox,have been for 2years now,it doesn't seem to be working very well, lots of pain in shoulders and hands.I seem to have lost my appetite,this has been going on for several months now,and I am down to 49kilos,getting worried,as have no energy,but just don't feel hungry.Had tests for the obvious,not that,wonder if anyone has the same problem.hope everyone having a reasonable day.x

Written by
Rosebaywillowherb profile image
Rosebaywillowherb
To view profiles and participate in discussions please or .
7 Replies
Livingston profile image
Livingston

The heaviest I've ever been, other than pregnant is 9 stone, but I do find it difficult to keep weight on these days. As long as I stay over 8 stone I feel OK, but dropping below just makes me feel horrible and I do find I need to make an effort to eat more.

I suppose that maintaining an inflammatory response over time is bound to use up extra energy and then there are the days when I chose between showering & eating a meal because I don't have the energy after work to do both - and showering always wins that fight.

What meds are you on? Leflunomide seems to be notorious for causing weight loss.

RAinK profile image
RAinK

When I was on methotrexate I lost 9lbs in 3 months. As soon as the methotrexate was stopped the weight went back on.

earthwitch profile image
earthwitch

Dramatic weight loss is always something to be taken seriously and get checked out by a doctor.

oldtimer profile image
oldtimer

Definitely point this out to your medical team. You might need a change in medication, or some investigations why you're losing so much weight.

Stynk profile image
Stynk

Hi. Yes. I have lost about 15-20kg from the start of symptoms. I now struggle to keep the weight on at around 52kg. If I go below that I look ill. I have little or no appetite. Even when on steroids I might only put on 1-2kg. The nurse tells me to gain weight all the time but eating too much makes me nauseous. I got scared when I went below 50kg and so did the Dr and changed treatment so now I am stableish around 50-55 range. Doctors just said part of disease.

Rosebaywillowherb profile image
Rosebaywillowherb in reply toStynk

Hi Stynk,glad to know I'm not the only one with this problem,looking in the mirror scares me, I look anorexic, am trying to make myself eat, but my stomach just can't manage great piles of food,I am going to try some protein shakes,as I can't afford to lose any more weight.at rheumatoid unit on Thursday,see what they think,maybe they will try me on steroids, will let you know.x

Stynk profile image
Stynk

Hi. I was told for a while choose calories so if I was out eat the most calories as t was craving veg and soups. Still hard have dark chocolate around the house to help. Let me know what they say. Good luck!!

Not what you're looking for?

You may also like...

weight loss

Not looking to lose weight - I put this in the search box: weight loss, losing weight and it seems...
Brychni profile image

Prednisolone weight loss

Hi all, hope everyone is keeping safe and well throughout these crazy times. Totally unrelated...
PM193 profile image

Weight loss

Hi everyone is it normal to have weight loss with this disease. I was never a big un usually...
Gaza123 profile image

Weight loss

OH has been on MTX for 6 months and hydroxy for about 2 months. Only seen consultant twice and...

Weight loss.....

Good morning everyone,well i was at the drs yesterday afternoon and got on the scales and i have...
sylvi profile image

Moderation team

See all
KateL-NRAS profile image
KateL-NRASAdministrator
Donagh-NRAS profile image
Donagh-NRASAdministrator
Nicola-NRAS profile image
Nicola-NRASAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.