Tocsilizumab: Been to meet our new rheumatoid doctor... - NRAS

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Tocsilizumab

alibromo profile image
7 Replies

Been to meet our new rheumatoid doctor today yes on a Saturday i was surprised She seems very nice. Well im glad to say i am back on tocs infushion next month :-) . The injections have made me feel so unwell but at least i tried them. The only downfall is i have to start a low dose of methatrexate too once a week. Didnt get on with it before but i shall give it a go again. Hope everyone is ok xx Alison

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alibromo
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Hi Alison- hopefully resuming a low dose of Methotrexate will be ok. I have been on 15mg subcu for about 9 months and the injectable doesn't seem to have side effects for me. What options do they give you for a Biological? I was shown a list of about 10 and asked which I wanted to try! Not the most professional approach but there you go. This is Canada! I am trying Cimzia which are subcu injection biweekly. I just want to get control of the inflammation.

Just curious about how your shoulder is? Was it a replacement?

Take care, cheers Doreen

angel-delight profile image
angel-delight in reply to

Hi, Doreen, I have had only one infusion unfortunately, it went very well but due to staffing issues I haven't been able to have another infusion, hopefully I will on my return from Canada.

Can I ask which part of Canada you live. I am considering returning to live in Canada again with my family.

All the best sorting out your meds.

Take care, Sue

in reply to angel-delight

I live in beautiful Victoria! There are huge differences in health coverage from province to province is my impression. Ontario does seem to be better in that respect but I love Victoria!

Cheers Doreen

angel-delight profile image
angel-delight in reply to

Thanks for your reply, I have a friend who lives in Vancouver, she use to live in Ontario. I have been unable to find someone who lives in the Toronto area.

Many thanks, Sue xx

I wish you all the best Allison!

XxxBas

Hope you get on better with the infusions again. And you don't have any probs with the low dose mtx. I hear my clinic have started doing Saturday clinics to try and help the large waiting list for appointments.

Take care

Kiki

alibromo profile image
alibromo in reply to

Thank you Kiki. Fingers crossed i will get on better. Hope you are well Alison xx

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