So it's been a while since I've been on to update you all. I wish I could report good news but I have trade one evil for an eviler one. I left you all off last time with beings diagnosed with sjogrens and scleroderma to accompany the Ankylosing Spondilititis. Well I wanted to get the best care for myself so I could try and get somewhat of my life back. Especially with the rate of deterioration my disease was going at. So I started going to the Mayo Clinic here in Scottsdale Arizona. After many appointments and test I was told I was missed diagnosed with the scleroderma and sjogrens and the real culprit was Autonomic Neuropathy with P.O.T.S. They said that because of being diagnosed with autoimmune disease that is why I probably was missed diagnosed with the scleroderma and sjogrens. So now there is a shift in gears and they are trying to find out why my autonomic system is failing. It has already affected my digestive, urinary, heart rate and blood pressure and saliviatory glands. So like I said I have traded one enemy for another. I'm grateful for actually having answers but scared of the future and what it holds for my family.
So this where I leave you now, staying strong the best I can... Just wondering when the nightmare ends.....wanting to wake up