Hi all. Although i follow lots of posts, i dont write on here very often but feel comfortable doing so with friends who understand. I first saw my consultant end of January and was diagnosed with inflammatory Arthritis. Basically they could not say if it was RA or PsA. This was due to the fact that my rheumatoid factor was low. Put on a course of steroids, Ssz and continue with Naproxen.
All going well until I began to react to the ssz with photosensitivity and was affecting my eyes quite badly. Spoke to my Rheumy nurse for the first time who was absolutely fantastic and quite reassuring. After speaking to my Consultant, they agreed that I should stop taking the ssz immediately and wait until my next appointment at the end of March with regards to trying something else. She also asked me to keep a diary. After my last appointment with the consultant, he categorically said that I had PsA as a diagnosis so accepted this even though i felt that they were clutching at straws due to the fact that i have had bouts of Psoriasis in the past.
This week i have received a copy of a letter which has been sent to my GP as part of a HQIP Audit i was put forward for. This i believe (as ive never had it explained) looks into my case, bloods, consultations etc and makes a diagnosis based on the information presented by my consultant. They have reached a conclusion that PsA is an 'unlikely diagnosis '. Under the intervention advice they have said to continue on the steroids, reviewed investigation and check ENA.
Other scores which i do not understand are TJC - 4, SJC - 3.
I feel rock bottom at the moment. Having a diagnosis helped me with my journey but now that this is in doubt and am struggling to continue to move forward.
Ive posted on here in the hope that my HU friends can reassure me that this can happen and that it may take a while for firm diagnosis. It would appear that most of you are experts having been through lots of different journeys yourselves and would appreciate your thoughts. Many thanks in advance x