Good afternoon everyone,well here i am in my pjs after the doctor has been to visit me. It all started Saturday night when the room started going round and i was sick. After that episode i settle down to sleep and woke up yesterday morning feeling very weak. Then after a lovely roast lunch the room went round and i had trouble moving across the room to get something to be sick in. Hubby went to clear one bowl away and he gave me another bowl which i was sick again only this time there was blood in it. Hubby did no more than ring for the paramedics who duly came and were lovely with me. I spent the rest if the day resting. Then this morning hubby again rang the doctors this time to inform them of what happened. They then decided i needed a visit from a doctor. Well he has been and he is refferring me to ENT as he thinks i have Menieres disease. I wonder now how much this is due to my ra/fibro and i wonder what next is going to happen to me. It is never ending with me,if it isn't one thing it is another. Thank goodness for my darling hubby who is taking great care of me.
Hugs for all of you who i know your all suffering at the moment.xxxx
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sylvi
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Sylvi, you are going thru rough patch at moment, and you have a fab hubby who is taking care of you, that's a blessing !! I suffer badly with tinnitus and had my first consultation with ENT two yrs ago. Because the tinnitus was so bad I had to have brain scan just in case it was tumour or something. Fortunately it was not, but there was much inflammation in eardrum and crumbling of upper jaw. So my tinnitus was direct result of RA. I was given hearing aids for both ears and also tinnitus masker. I wear masker when tinnitus driving me mad and it,puts sounds in ear to try and take mind off the nagging tinnitus sounds.
Mostly now I manage with the hearing aids as I am slowly coming to terms with the racket in my ears !! But have quite serious hearing loss in both ears now. Consultant tells me that RA nibbling the ear nerves away. I did have a few months of vertigo when I started with all this, and like you was in bit of a state. Consultant gave me cortisone shots into my eardrums and since then no vertigo, but tinnitus still there. Most of my family cannot understand how I have become such a wreck, deaf and losing my sight, all courtesy RA. I can't be bothered explaining now, I'm just fed up with the whole lot.
We RA patients have a lot to deal with and it can be a lonely old world when no one understands.
Hope you get your ENT appt soon and that you start feeling bit better. Lynda xx
Thank you Lynda for your heartfelt reply and it is nice to know someone knows what i am talking about. To say i am fed up is an understatement.xxxx
in reply to
that's very interesting I have tinnitus and I never connected the too I have lost 40percent of my hearing it all started 6 years ago for me the eyes are giving me concern as I have found out my grandmother has ra and went blind I wish I had more information about the things that can go weak with the rd
you are in the wars at the moment. Hope things improve for you soon,
Hugs
Beverley
Sorry to hear that your having a rough time at the moment, take care, cyber hugs coming your way. Xx
Hi Sylvi. Poor you - I can completely relate to the never ending string of horrid and bizarre symptoms although all your sufferings are much worse than mine I know. Mennieres is meant to be horrid. I've had periods of dizziness - Bell's palsy once -and have just fallen over for the fourth time since Christmas with this latest spell of mild dizziness so I really know how foul it is to feel out of control and sick. Hugs to you. Txx
I get meniers disease have had it years my ent doctor tell my you only get it when you are moving about if you go dizzy when sat down its vertigo I don't take any thing for it I just lie down hold on to the bed till it passes it not nice if I get a virus it will give me a bit of o spin hope you get it sorted soon
Thank you ladies,it was when i was up and when i move that i get dizzy and when it happened before Xmas it was both. It has been horrible just lately. I am fed up feeling ill all the time. I want to be able to do a bit of housework without suffering. I will have a second opinion on my ra/fibro on March the 5th. Then i hope the doctor can help me.xxxxx
Hi. I have had acute labrynthitis which has very similar symptoms. This was a couple of years ago before I was diagnosed with RA so unsure if linked. I ended up in hospital on a drip due to being severely dehydrated ftom being sick. Pls ensure that you drink as often as you can even if they are little sips. I feel for you as I know how horrendous this can be especially the dizziness. Big hugs x
Thank you all very much for your kind words. Well i slept well last night thank goodness. Hubby went to fetch the script that dr was doing for me,but when he got there the dr forgot to do the script and when he did it he gave me the other drug that i sue not the one i wanted. So hubby will be going back this morning to get the right script and to check to make sure the bloody dr has not forgot to sent an urgent referral.
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Does this make as much sense to others as it does to me?
what does this say about me?
At the end of my tether 😢
RA Doctors never tested my blood
