I wanted to ask those of you on tocs how you are given the infusion. I have been on it just over 2 years , i used to have a saline drip while waiting for my meds to be made up. I would then have my tocs which would take 1 hour then 30 mins of saline to flush it through. I went yesterday they have stopped the saline before & after as there is no proof its needed.
Well i have felt terrible. A really bad head ache, shacky & just a general feeling of unwell. It might just be a coinsidence but i have never felt like this before.
Once again decissions being made about our health for us & not asking what we think. Cost cutting me thinks. Xx Alison.
Written by
alibromo
To view profiles and participate in discussions please or .
Only thing I can suggest is for you to make sure you tell them exactly what happened with your last infusion, and what was different from the other times.
Its 18 months since I had Toc and my first thought was whether the extra fluid made a difference to you but if I remember correctly it is not that much. Hope it is a coincidence and you have perhaps picked up a 'virus'. Farm
I due one today, they just mix it with saline and it takes one hour, then about 15 mins to flush it through. At first I had headaches and felt rotton, but after the last two, the effects have been hardly anything.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Tocilizumab
Tocilizumab
