Had RA for 7 years and Fibro added last Christmas. Just starting summer break and need to use time to re-learn management and self-love as been mismanaging all term. Saw rheumatoligist last Wednesday - major steroid injection, increased mtx to 20mg and back to 2 weekly blood tests. Openly admit here that had been denying mess that RA was in, as ignoring each body 'if I do this, she'll take note!' Can't and not prepared to carry on like this.
Being honest, taking much to write this and letting others now that this is what I've done. Need whole life re-address to not allow RA to dictate.
Any realistic thoughts?
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jofle1
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Hiya jofle1. I think you really already know the answer & that's listen to your body. You have a disease that will not take kindly to being ignored & intervention is the only answer I'm afraid. I learnt this the hard way when I was without meds for 3 months & RD really bit me on the bum. Not going back there.... ever!
Over your summer break pop on here & I'm sure we will give our experiences & support you ask for, wherever possible & maybe that will help you.
Nomoreheels - very true and worth handing back to me Sometimes just get blinkered and forget. Just lost sight ... Not an easy thing to admit as too independent and prefer to suffer in silence, to my own detriment!
Sometimes we try tone too brave or are just in well denial, at least that's what happens with me. Keep taking the meds as their name is correct they modify the disease, so will help prevent any future problems.
I hope you have a smashing summer break and get back on track lol!
It could have been me writing & sometimes I just need bl**ding obvious pointing out lol!!
Enjoy the summer.
My body points very little out to me apart from "hey gimme those RA drugs so I can reject them!" I mean how can I ever learn accept something so evasive?! I hope you have a great holidays and good luck with listening to your RA sometimes.
One week in and better place ... still hurt, though I have spoken freely and this has been quite emotiinal on many levels with some long standing friends. A reconnectiin with my hubby is the best thing to happen and, I know much was me pushing him away.
the mismanagement and problem was me, very aware of that and chose to push others away. Balance is more even than it has been for a considerable time. It isn't as balanced and finally tuned as is needed. Then I always am a work in progress!
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Life back with enbrel
Reduced methotrexate and dry mouth is back.
Just when I thought things couldn't get worse!!
Hi Everyone, havent forgotten any of you-thought i would say hello! xx
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