Hi all, well I did see the rheumatologist Dec and he ran some tests. OK confirmed the RA, OA and osteoporosis and fibro then announced I was a mess. Oh yes included the various arthritis in the spine and the kyphosis and so on. But of course no treatment as I can't have anything. Did suggest knee braces. Want ankles as well but then I could not walk at all. Boots Ok to hold the feet as they go over so much the muscles and tendons are in a state and tight and painful. I have to hold my foot on the far edge by the big toe to get the knee in line on the right side with the hip. So no real progress.
Any ideas on whom I should see next?
Not sure I am even taking in Vit D as I cannot tolerate any fat or very little. Spine is quite painful on the lumbar part and the neck as well. [crumbling started - as seen on x-ray]. No help for that either. Said it was difficult to sleep cos of neck pains and added knee and muscles.....did not comment. Paid out £150 today. £180 last time but at least he confirmed what I was told in 1994. It is now on my records.
[for those who do not know me I am qualified in medicine and have an ND and PhD for Immunology. NOT a GP type medicine though.]