Its been a while since I last posted. I'd like to say its been because I've been really well but unfortunately that's not been the case. I'm currently off mtx because of side effects so I'm a little sore but nothing too bad yet. I'm due to see my specialist nurse on Monday to discuss where we go from here.
In a nutshell I've had the awful hairloss over the past year, terrible fatigue and brain fog. At Christmas I started to get nauseous, puffy eyelids, cough and sore throat. It was like I had a lump in my throat and it hurt to swallow. While all this was going on my thyroid was out of control swinging from too high to too low so its been hard to point the finger at the exact cause of the symptoms.
Anyway after a desperate call to my specialist nurse a couple of weeks ago I was advised to come off mtx to see if it made any difference. Within days of missing my first dose my energy levels increased. Although tired I'm not as bad as before, hence I'm able to catch up on here. The sore throat has cleared up and my eyes feel much better. Unfortunately this leaves me wondering what the next step will be? I remember being terrified of starting mtx but now its like an old friend who has kept the pain away really well.
Deep down I'm hoping I've made a spectacular recovery over the past 2yrs and don't need meds after all but I have a feeling that's just wishful thinking and soon I'll get a sharp reminder of why I do need the drugs. Does this sound familiar to any of you who have also ended up on different drugs?
So now I need to swot up on different treatment options so that when I attend my appointment I at least have some prior knowledge. On the other hand maybe I'll be advised to go back on mtx to see if the symptoms return? I do hate this feeling of helplessness but rather fancy having a bit more hair again