I have sero negative RA which is why it took a while ... - NRAS

NRAS

37,012 members45,736 posts

I have sero negative RA which is why it took a while to diagnose as bloods normal. The rheumy wants bloods to test inflammation scores.

Tuttlebees profile image
5 Replies

They are in a normal range which is why it took so long to diagnose. I asked why they would check just for the inflammation markers only when they are always normal and show no evidence of inflammation. The rheumy said it was to see if they go up. It seems odd to,check for something that is and always has been in the normal range?

Written by
Tuttlebees profile image
Tuttlebees
To view profiles and participate in discussions please or .
5 Replies
Someonesmother profile image
Someonesmother

I am sero negative inflammatory arthritis but my inflammation markers have been high since I first started asking for someone to help me nearly 18 months ago now. They may be looking for any changes or monitoring to see if anything makes a difference maybe.

Hello BOB here

This happens, I have Psoriatic Arthritis, markers can be hard too find

All te best

BOB

Philip profile image
Philip

The same here lol, my Rhumy sent me to have a scan and that is when they said yes you have sero negative RA and that's when they decided To gave me SULFASALAZINE to help me.

Philip

Rosie_rabbit profile image
Rosie_rabbit

Hi I don't have sero neg RA as my RF factor is mildly positive. At initial onset which was acute for about 2 weeks my crp was a bit elevated.

Then for over 2 years all my inflammatory markers were within normal range even though I did have symptoms that came and went. I could never understand how I could feel so bad but gave normal bloods. So, like you this delayed diagnosis until this summer.

They have continued to check my bloods and in the last 6 months my crp has slowly been creeping up and up and hasn't been within normal range. So I guess they are continuing to check you because things do change. They also use your inflammatory blood results to work out your DAS score, which I only found out last week.

Hope this helps and your coping ok? Rx

Sophie123 profile image
Sophie123

Hi

I have a mildly positive RF factor but have been diagnosed with PSA because of how it presents itself. I too have a awful lot of pain that moves around a lot and despite having two weekly blood tests, they always come within the normal range! Personally I think it is advantageous to check for any slight deviances. My doctors seem more fixated with checking that my body is coping with the meds more than the inflammatory markers instead of taking everything into account.

Good luck with yours.

Sophie

Not what you're looking for?

You may also like...

Sero Negative RA and Sero Negative Inflammatory Arthritis is it the same??

Sero Negative RA and Sero Negative Inflammatory Arthritis Can anybody explain to me the difference...

Finally a diagnosis 18 months on of psoriatic arthritis which consultant says can be misdiagnosed as sero negative RA

Apologies for a long post! To recap diagnosed anti-ccp positive RA in 2016. Put on triple therapy...

Rheumy keeps saying everything is due to fibromyligia not my RA & I don't think I even have fibromyligia

Been diagnosed with RA just over a year but I had symptoms for at least 2 years previously. 4 years...

Hi i have Poly RA, but though inflammation is zero i have pain everywhere and my hands are getting so bad, but they do not believe me. Why

my blood count was originally 500 but now is zero on inflammation but the pain is getting worse...

New to the RA didnt think i have it this bad so quick

Hi My Names Angie,i am also finding it hard to adjust to the RA ,i was on hydroxychloroquine for 3...