Hi, I'm due to start leflunomide on Thursday, has any... - NRAS

NRAS

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Hi, I'm due to start leflunomide on Thursday, has any one got any feed back on how it is? I've had RA for 20 years and everything I try fail

Zoe73 profile image
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Zoe73
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14 Replies
chemar profile image
chemar

hi zoe ive been on leflunomide since January have had a few side affects with it but nothing major, not sure its now working for me but hope it works well for you. take care michelle :) x

Jill60 profile image
Jill60

Hi...... Who on here has the Infusion type Biologic med? Is that better than injecting ourselves??? I know need to go back on Enbrel or so etching similar, but I keep getting told that the infusion type is best??.........is Leflunomide a Infusion? Or injection? Sorry Zoe, wish I could help! but I don't know that Med...... I soooo Hope that this med will work for you Jill x

allanah profile image
allanah in reply to Jill60

I have had tablets, injections and infusions. The consultant decides which type of drug is best for you and it's down to I think some drugs are broken down in the stomach acid therefore might not work therefore they are given it by a drip.

Other drugs work fine by mouth , so I really don't think infusions any better or quicker in reality, it depends on the drug being given. But other drugs do work quicker by drip ie antibiotics etc! Confused? U will be!

Different dmards or anti tnfs work on different types of arthritis so the consultant will generally advise u on what's best for you.

The nras site has loads of info on dmards and biologicals if you have time to have a look as well. And by the way it's great you are now asking loads of questions, I find this site so good for that as you say xx

Trulyfedup profile image
Trulyfedup in reply to Jill60

I have (actually on break at the moment) infliximub infusion every 8 weeks. I don't know if this particular one is available in injection form.

I tried Leflunomide and it didn't agree with me...mouth ulcers etc but I seem to have got on ok with Inflix....

I like lots of others,inject myself each week with MTX. (On a break from that too).

I don't really know enough about the other drugs, I should do really, I may look them up online and see what's on offer!!!!!

I hope you are faring ok today . Maryx

Jill60 profile image
Jill60

Oops typos, should Read Something, but IPad typed in etching ........

watson3 profile image
watson3

Hi Zoe

Leflonomide in one of the newer DMARDS. I tried it early on in my disease last year. I suffered persistent diarrhoea with it, that was the reason I stopped it. Trialled it for 3 months with little effect. But don't let that put you off.

Good luck and let us know how you get on.

Belle76 profile image
Belle76

Hi I have just come off this due to constant diahrrea, but it worked really well for me. I was on it for a year.

Kittykatxxxxx profile image
Kittykatxxxxx

no feedback of this drug but good luck!

allanah profile image
allanah

I got leflonamide and have been well on it , in as much as it definitely reduces my swelling. It comes in tablet form and took for me about six weeks till I felt the inference. How great u r getting a good dmard and I hope it makes a huge difference to your life xxxxxx

Selfie profile image
Selfie

Hi I have been on leflunomide for 4 years. Firstly alongside infliximab (infusion) the combination of these two drugs put me into remission for 2 yrs during which I lowered my dose to 10mg/day. My body grew familiar to infliximab and it stopped working so I changed to tocilizumab (also infusion) but have kept taking leflunomide although now a 20mg dose. I have had no side effects to leflunomide and would recommend it as when taking methotrexate I kept forgetting to take folic acid.

Good Luck with this drug.

I've had absolutely no problems with Leflunomide - but it seems to be a very individual thing as to what suits you:-}

Good luck,

Cece x

HKFuey profile image
HKFuey

I've been on Leflunomide for almost two years and so far it's been the best and most constantly effective DMARD. No side effects whatsoever. Hope you'll find the same thing.

Someonesmother profile image
Someonesmother

I tried it for 6 weeks but I got peripheral neuropathy in my hands and feet and had to stop immediately so I didn't get to the point of benefit but that was the only reaction I got. Mind you I have a strange and weird body that has bizarre reactions to things. Give it a whirl it may work for you

Zoe73 profile image
Zoe73

Well here goes .... First one today!!!