Any feedback on cimiza ?

[claireyj]

Yesterday I was told I qualify for the anti tnf drug cimiza ...after a year of pain unless steroid injections ...excited and nervous but desperate for my life/feet back ...good honest feedback would be great thanku lovely pepes xx

[Hidden]

Hi Clairey,

That is wonderful news.....so excited for you. I am not on Cimzia, my daughter is and she is now, over a year on, absolutely fine. You simply would not know she had RA now. I started another anti-TNF a few months ago and am certainly getting results. There are many folks here on Cimzia so they will give you even more encouragement

Happy days

Katie x

[claireyj in reply to Hidden]

Wow so pleased your daughter is doing so well that's great :)) .... determined not to frighten myself into googling everything , I know there are risks/concern but u have to live eh otherwise none of us would do anything ..will let u know how I get on , thanks for replying C x

[watson3]

Lots of people on here will give you good advice. Not on the drug myself. I am so pleased you can start the drug soon. Best wishes.

[claireyj in reply to watson3]

Thank you x

[joan_w]

I have been on Cimzia for four years and it has changed my life. I have had massive improvement to how I feel since I have been on it. I hope you have the same success, do let us know.

Jo

[claireyj in reply to joan_w]

That's fab Jo so pleased and yes will keep u all updated C x

[Hidden in reply to claireyj]

That's great news Claire - I really hope it works brilliantly for you. X

[Luthien66]

Hi Claire, I started Cimzia last Friday and am feeling quite positive. Although there is still a lot of pain & stiffness and I am starting to feel it's probably working. Got my second injection next Friday and really looking forward to it.

Like you I was very nervous but excited....I had been fighting for quite some time to get onto anti-TNF's but kept being told because of cost I had to persevere with the DMARD's & steroids....I knew they weren't working as the pain and inflammation was getting worse. Finally I won my battle!

Everyone I've spoken to about Cimzia have had nothing but positive feedback and how much their lives have improved....lets hope you get the same outcome. xx

[zaggill]

Hi Claire, hope you get on well with Cimzia Unfortunately it didn't work for me.....but I react badly to lots of medication due to another immune deficiency illness.....but my sister in law has been on it 18 months and wouldn't swap it for anything

[stbernhard]

Hi Claire, CIMZIA is the best thing that ever happened to me with RA! Together with MTX and Sulfasalazine it has enabled me to lead an almost normal life again. Don't be afraid of the injections. For me there are no side effects. I wouldn't want to be without it! I really hope it works as well for you as it does for me!

[DonnaJoe]

Hello Claire - Cimzia is amazing, after three years of trying all the other drugs available with unwanted side effects and on going blood tests, I was prescribed anti TNF a year ago and only after a few injections began to feel so much better - your rheumy may ask you to take methotrexate along side cimzia to maximise the benefits, however I refused to take the chemo drugs as I really don't like putting it into my body and then there's all the blood tests you have to have, lucky for me Cimzia has worked well on its on and its worth you trying it on its own first - I do still get the odd swollen joint here and there but its nothing in comparison to what I suffered before starting the Cimzia -it's just a once fortnightly injection and that's it, no blood tests or any other medication - for those of you who read this post check out the new clinical trials for the BiP drug!!

[claireyj]

Thanks everybody so much for replying ....C x

[summer32 in reply to claireyj]

Good luck hope it goe well x

[Case]

Hi there,

I've had 3 lots ( double dose for first 3), had consultant appt, and yes it's making a difference. I've gone from 23 to 13 painful joints, 15- 3 swollen joints in a relatively short time and I can see / feel a noticeable difference. Went to harbour festival, walked alongside my family for the duration. More than I've walked in 2.5 years. I'm so pleased. Good luck.

[SaraF]

Good Luck and I hope it is you wonder drug, unfortunately it wasn't for me x