told need wheel chair to get around now????????????

[1923]

saw surg.on mon.told foor to far gone as r.a. as done to much damage..need a new knee as well as it is on its last as well.but you need to be able to stand up as soon as poss.after opt.i would not be able to as my foot is to painfull.i am at a lose as I don't know what to do and am also very dep.at min.its as if I am falling apart.my right shoulder is gone my right knee my righrt foot as well.had all the bios 2yrs ago did not work made me v v ill.on 15mg methotrexate wkly not even touching the pain.....20 yrs of r.a..and feeling just about have had enough ........

[Hidden]

I don't know what to say to you really as I'm a beginner relatively - but loads of sympathy for you.. Is 1923 the year you were born? If so well done for making it to the grand age of 90 with 20 years of RA to contend with and I really hope there is something that can be done for you very soon. Tilda x

[1923 in reply to Hidden]

THANKS FOR YOUR KIND WORDS.I WAS BORN 1952.SO IT WOULD BE A GREAT DAY IF WE COULD MAKE IT TO 90.FEELING A BIT BETTER TODAY I AM SURE YOU KNOW ABOUT BEING DOWN AT TIMES AS WELL.BUT GOD IS GOOD.LOTS OF LOVE 1923.

[allanah]

Hi, I am sorry about your news, you must really feel fed up. However maybe it will give u some independence as I suspect it's been a while since walking wasn't painful. Also maybe once you get your surgery done you will get rehab and back on your feet. Good luck xx

[shirlthegirl]

Sorry to hear of your pain, My brother has also had it for 20 years and really finds it hard sometimes, He is also in a wheel chair,but I'm hoping that all how best wishes help you to feel a bit better, Sending lots of hugs XXX

[1923 in reply to shirlthegirl]

THANKYOU FOR YOUR KIND WORDS.FEELING A LOT BRIGHTER TODAY .LOTS OF HUGS.XXX...1923

[LuckysJoy]

So Sorry To Hear I Can Understand all You say on this I can say, I was diagnosed 22 years ago, And you have Just Told my Story, I feel Exactly as You described, to most Joints giving, Shoulder locked up, and (broke twice) within 2 years, Right Hip out, Lower Back, I am squeezed into a TINY Bedsit, i have a galley kitchen but Frame does not fit If I need surgery, Where i currently am Could fit a wheelchai, Crap, I cant even fit a chair for people to sit, IF they even do visit, I live in my bed 20 Hours a Day if not more, I cant get better like this, No room to do physio stretches, or anything else, Yesterday my broken up chest of Drawers which has crumbled apart, fell over on to me, and Plant and everything else went on top of me, Inc the Mirror, I have on top, I was Buried, No one to Help as I live alone, So i def know what u mean when u say how you feel, I most times now, Wish I would wake up, But I know that is not good thinking, I cried out for Help again, We'll see what happens, If anything, Nothing new on Housing, They offer me More Studio with steps even lol

[DandyLad in reply to LuckysJoy]

Hi there, I felt compelled to write to you. It sounds as if your living conditions aren't suitable for you, do you have a good relationship with your GP? and your RA doctor? If you could get them to write a letter for you explaining that your condition has worsened and that you need to be re-housed immediately. That is of course if you have council housing or housing association. It's worked for me. As I don't know your full story it's hard to give you the info you really need. Are you receiving benefits at the moment? Do you get DLA? You might also qualify for some respite care and if you do then while you are there they could help you with your situation. Have you got family and friends near you? Call them and tell them exactly what's happening for you and ask for their help. If you need a carer, preferably a live in one, the council would def. give you a 1 bed property or if you are really luck a 2 bed. I can only wish you good health and I hope that you get things sorted out sooner than later.

[Lorrayne]

Hi 1923, Just about had enough, my exact words too. I really do know how you feel and I'm still not sure what to say to make you feel better, I am in the same place right now, 22 yrs RA, body totally falling apart and very painful, all joints top to toe, unable to move, then diagnosed last year with bronchiesctasis, RA attacked lungs now, cant breath, very down and depressed, burst into tears in Rheumy appoint in April, went to see my GP and burst into tears again, I now spend my days on anti-depressant drugs, steroid and other inhalers as well as the usual suitcase of RA meds. I am a total wreck at the moment. Support Group request turned down cus they have decided I can go and work! I am 50 and really do not know which way to turn, my GP very kind but says it is perfectly ok to feel like this when you have had a chronic disease for so long. It seems as tho there is no-one who can really help us. Take as good care as you can x

[1923 in reply to Lorrayne]

MY DEAR LORRAYNE I AM SO SORRY TO HEAR YOUR STORY.LIKE ME YOU FEEL NO ONE LISTENS OR CARES.BUT WE NEED TO KEEP GOING.REM.CHIN UP WE WILL HAVE BAD DAYS AND GOOD DAYS .MAKE THE MOST OF THE GOOD ONES .CHIN UP.HUGS XXX.1923.

[Lorrayne in reply to 1923]

Thank you for your kind reply, my chin is up! I hope yours is too now, for a while anyway, that is what I will think of from now on, 1923 chin up! hugs back, and yes, get those go faster stripes xxx

[DandyLad]

Hello there,

I am sorry to read that you're going through the mill and it's no wonder that you are feeling depressed those of us that live with long term illnesses go through bouts of depression but somehow we come out the other side. My RA is in my shoulders, elbows, wrists, fingers then it misses out a bit and the starts in my hips,, knees, ankles and toes. Just recently I had to admit defeat because the pain was v.v.v.v painful, it hurt to walk and it was getting difficult to use my walking sticks. Now I have no option than to put my big fat backside in a wheelchair. RA has destroyed my life but I refuse to let it get me but I am very lucky as I have an amazing partner who is now my full time carer and my Mum. The 2 most important people in my life keep me going, I've got crazy cats who entertain me - find those that mean a lot to you and tell them what you're going thru, tell that GP exactly what help you want and keep on asking and shouting and make your voice heard. You deserve good healthy and happiness and I really hope that you find it and when you do, let me know how you got there.

[1923 in reply to DandyLad]

THANKS DANDYLAD FOR YOUR KIND WORDS.I THOUGHT I WAS BAD BUT YOU SOUND WORSE.I WISH YOU ALL MY LOVE AND KEEP YOUR CHIN UP .WE WILL GET THERE..EVEN IF WE ARE IN A WHEELCHAIR I AM WAITING ON ONE AND I AM GOING TO GET GO FASTER STRIPS ON MINE.HAHA TAKE CARE .1923.

[Lee-Anne-NRAS]

Hi 1923, sorry to hear all your worries at the moment. If you'd like to talk to someone that has had RA for some time, we can try and put you in touch with a volunteer. If you feel this is something that would benefit you then please give our helpline a call on 0800 298 7650 Mon-Fri 9.30-4.30.

Lee-Anne

[1923]

THANKYOU LEE-ANNE.I WILL KEEP THE NUMBER HANDY JUST GOT A BIT DOWN SOME TIMES IT IS SOSO HARD TO COPE WITH THE PAIN AND THE DEPRESSION.THANKS AGAIN 1923.