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I guess I'm not alone in being frustrated with what I can & can't do these days!

My ability to do energetic things has significantly decreased over the last few months, I have always been a "full-on" on the go person doing lots of things including hill walking, swimming & sport.

Now with this dreaded condition I have to think about everything I am going to do in order to pace myself!

We have a fairly big garden which I have mostly taken charge of, it includes a lot of hedges & grass which of course need trimming!

My husband is now doing a lot of it which I'm grateful for but I HATE not being able to help him as much as I would like to!

He retires in a few weeks time & I think I'm going to find it hard not to try & help him with jobs that need doing - how do others cope with that?

I feel guilty if I'm sitting & reading or on the computer.

It's not going to be an easy adjustment - for either of us!

8 Replies

Don't feel guilty at just sitting, do what you can, when you can, that's what I have found I have to do. It does take the family a long time to come round to it, but once they do it makes life a whole lot easier. Take care.xx


im with you .. big garden is a no no for me.. luckily I HAVE A SMALL one x


I have a small garden and i am struggling to do even that now. I am so fed up with how my body is attacking me.xxxx


Hi there so know how you feel. Went to London yesterday done sod all today. Its the way this illness is. Enjoy the bits you do xxx


I have to give myself a good talking to every time I step foot in the garden at the moment. Not only are there 101 jobs staring me in the face that I'd be crazy to tackle, but from where we are I get a panoramic view of fit & healthy people bending, snipping, cutting, digging, carrying, climbing ladders etc. etc. Fortunately they can't see me so easily so if the pep talk doesn't work straight away I can weep & snivel until it's out of my system. I just have to get over this stage .... is that how you feel too? I suppose one approach is to do things in short, sedate bursts & gradually things will get done - that is soooo not me but I think it's going to have to be. There must be a way to adapt to this thing. Luce xx


As I've probably said several times on previous blogs, i use a kitchen timer. I set it for an hour, sometimes for half an hour if I'm really bad. I do something for an hour, then the timer goes off and I change what I'm doing (from activity to rest or vice versa).

I've found it so useful to remind myself that I need to alternate what I do - not too much gardening and not too much sitting either!


Getting the balance right is so difficult - particularly as the condition can change so much from day to day.

I've recently had to get people in to do housework and gardening for me and I found it all too easy to give up completely and sit on my backside all day.

Every now and again though I find my inner strength return and I find I can do a little bit (sometimes only 5 mins) if I can then immediately sit down to relieve the spasms. I trail a little plastic chair around after me and am sure I look very bizarre plonked in the middle of my front garden bed on it.


I'm all for what works for us now rather than what others think. Anyway if they are talking and looking at what I am doing they must have very sad lives!


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