Hi I wrote last time to say how unhappy I was with my consultants they were disagreeing with each other and in my opinion were not helping me at all!
My GP advised me to speak to PALS as quite a few of you on here did. I emailed PALS for paperwork when out of the blue I got an appointment. I have to admit I attended with trepidation wondering what would happen and was scared when I was called into the head consultants room.
I have never been so shocked in my life! He was wonderful! He said he was not surprised I was feeling so down, that the other consultants should not have disagreed with each other, my disease is definitely RA not Fibro, my disease is definitely still active after 3+years and I am a candidate for biologicals!
I could have cried! The plan is now sulpha and lufludamide for 2 months with a next appointment booked and if it is not working satisfactorily then a move on to biologicals.
I don't know what happened or has been said, I am just thankful that I feel that I am being listened to at last!