Good afternoon everyone,well i have been to the drs this morning and i am flaring in a big way. I have never felt so ill. Not only do i feel ill i ache like hell too.Dr has upped my steroids to 3 for a week and then i am on 2 a day for the foreseeable future.. I can't wait for the anti-tnfs and god i hope when i get them they work.
I hope and pray that none of you are suffering....xxxx
Bless you always thinking of others. Sooo hope them tnf come soon for you christine hugs for you too xxx
My nurse is going to give me one on the 5th june, we are going away on the 8th so hopefully it will help me while i am away.xxx
Oh sylvi you do sound like your suffering. I'm going to send one of your sylvi hugs right back at you. Wish you better x
pleased you went.. what happened re breathing at appointment?? did you mention that too?.. the steroids will help your chest too x
Hi Sylvi, sorry you feel so bad. I am also in the middle of a full scale flare but see my consultant next week and I am on Anti TNFs as well as MTX so they don't guarantee you won't get a flare. It sounds as if you need to be on anti TNFs anyway. I am surprised they have left you so long without that extra help.
A steroid injection should help pretty quickly. When I have them, I find they work within 48 hours and keep me free of pain for some time. Hoping my consultant will give me an injection when I see him next week as been off steroid injections for nearly 6 months now.
Enjoy your holiday as well. Love LavendarLady x
Thank you LL, i am getting a steroid injection on the 5th of june as i am hoping it will help for the journey to devon. It will be a slow trip down there i know,but the change of scenery might do me more good than little. xxx
Hope your injection works Sylvi...i love devon....hope you start to feel better soon too.x x
Thank you.xxx
Sorry you are not good Sylvi :((( ...lets hope the anti tnf's don't take too long ..take care C x
Sorry to hear you're suffering Sylvi. I really hope that the anti tnf's are the turning point for you as you've had more than your fair share of pain recently. A holiday will do you good so fingers crossed that the steroid jab gives you some relief.
Paula x
sorry to hear that ur suffering and i hope they work and u feelbetter soon x
Sorry to hear you have not felt so good today, hopefully it won't be too long now. xxx
sorry to hear u flaring badly, hope u feel better soon n u get the anti tnf drugs u so obviously need , big hugs coming ur way xxxx
Lots of love sylv and take care of yourself xxx
Hi Sylvi. I feel like I know you as I have been lurking in the background for weeks now!
I'm so sorry for your suffering & pray you will get some relief very soon. xx
Oh Sylvi, I have no idea where you live, but I wish I was living down the road to you so that we could have a nice cup of tea together and put the world to rights, have a bit of a moan about our painful bits and pieces and hopefully a bit of a laugh too. But more importantly I'd like to give you a big, but gentle hug 
I'm glad you've got a holiday to look forward to, pain free after your steroid injection, all being well. Take care of yourself in the meantime lovely lady. Love June xx
Thank you all very much,it means a lot to me to know i have friends like you all.You are all a lovely bunch of people. For anyone interested i live in the midlands,between coventry and nuneaton.
I think i will have to have another day off again today,even though the head is willing the body doesn't want to know. So it will be another day annoying everyone on here and f/book. I had some sleep last night because i took a sleeping tablet to help me. So i have had at least five hours of uninterupted sleep which for me is like having a lie in until ten o'clock.
I thank you all for your hugs and kind thoughts they are most welcome and if anyone is in my area and would like a cup of tea you are welcome to come round.xxxx
How I wish I did live closer for that chat & cuppa,but I'm on the south coast. still I do hope the injection does give relief so you can make the most of your holiday. I have found the injection have helped me at times of flare. any idea when the tnf drugs will begin for you? I'm on my 7th injection of Enbrel, I do feel better although my inflammation rate is still high so all joints have been effected so back on crutches as I've fallen a few times . I'm still hopeful that the drugs will help me improve my quality of life.
Have a lovely holiday, take care of yourself. love &hugs Alison xx
Big hugs sylvi, hope you feel better soon xx
Hi Sylvi
I feel for you. I think we could all cope better if we could get some sleep, don't you?
The steroids usually work for me. I went to my niece's wedding in Gretna Green and didn't know how I would cope with the journey there never mind the rest of the celebrations, but before I went I was put on 8 steroids a day for 5 days and once they had kicked in I had a fabulous time - I was the last one dancing, something I haven't done for a long time.
Sorry to hear your flare is not dying down fingers crossed for your steroid jab and tnfs working for you. And hopefully you will be feeling better in time for yr trip.
Caroline x
Thanks caroline and everyone of you have posted. I am rather fed up as it is affecting all my body,my eyes don't focus very well and the fatique is a killer. Just for once i am not doing anything at all and for me that is very hard to do,but i'm doing it. Thank you all.xxx
Oh Sylvi, so sorry and hope for a biologic very soon for you. (I went on Enbrel 30/4.)
Love and little hugs,
Julie xx
rest up and try and get some sleep too x
That is all i seem to be doing Summer, i don't have the energy for anything else to be honest.xxxx
As long as you have the energy to read our messages to you.
Have felt guilty not being in touch while I was offline due to no motivation and feeling bad
Sending love
Xx
Great now I'm flaring
Flaring badly but I did it! Charity Walk for NRAS ticked off my bucket list of things to do! 
I have shoulder and neck pain driving me mad, I have headaches most days down one side of my head .
