I hope everyone is feeling alright just now and not suffering too much. I don't know what made me think of this today but i thought i would ask and see if anyone knows if we should be having regular bone density tests done for osteoporosis. I remember on my first visit to rheumatology years ago they sent me for one and it was fine back then but i remember them saying we will do another test in about 5 years, well that was over 12 years ago and they have never mentioned it again and i keep forgetting to ask as there has always been other things to discuss when i go and it goes out my mind so i thought perhaps someone on here would know and it would be interesting to see how often others get this test done. xx
Should people with R/A have Bone Density Tests? - NRAS
I think if you constantly have low vitamin d deficiency then yes you get sent for regular tests, I had my first about four years ago and was told I have osteopenia, and my doctor mentioned last week when my vit d test come back deficient again that I will be due for another dexa scan soon, so have to wait and see
I've had 2 scans in four years as I also suffer with osteoarthritis in knees and hip joints.
I don't know if i have ever been tested for Vitamin D Deficiency, I must ask when i go for my blood test next week to the nurse. Thank you for your reply. x
I have had two scans in four years
I had a DEXA scan a few years ago, but that was a routine one because of my age as my health trust scans everyone over 50. Since it was fine I'm not due to have another one for a long time as I don't have particular risk factors. I don't think it's the RA that poses an extra risk, but only if you take a lot of steroids. Polly
I have had a dexa scan,but i have been put on ad-cal because of my ra/fibro so though unless i break any bones then i will get another scan.xxx
I had a bone density scan eventually (waiting list two years) because of being on oral steroids for the RA. It showed that I have above average bone density for my age -all that weight bearing exercise is working! So I was able to come off the Vit D + Calcium and the aledronate.
It is "intended" that I should have another bone density scan -but when seems to be subject to some disagreement - so I'll wait and see what happens for a couple of years.
My rheum as I'd there was no need when I asked him, I asked cos I take a lot of steroids and had an early hysterectomy, but no !
Thanks for all your replies. I have had loads of steroid injections so perhaps i should ask to get vit D levels checked. xx
I have had to DEXA scans one in 2000, and another in 2011. These were taken as I have oesoporosis running on the maternal side of family, mum, grandma, and great grandma. They are keeping an eye on it, one of reasons I am still taking HRT after all these years as it slows the process. I am also taking Vit D as I was extremely low in that.
I have steroid induced osteoporosis (with other contributory factors I suspect) and it was diagnosed after I pushed for a DEXA scan. My understanding is that it is oral steroids which increase the osteoporosis risk - I have certainly been told that infused steroids don't carry the same risks and maybe the same is true of the injections. I did have to push for the scan - the docs were happy to just to prescribe the osteoporosis meds "in case" based on an assessment of my risk factors, but I'm glad I got it checked out. Based on my experience, the best person to ask for referral for a DEXA is the rheumatologist rather than the GP because I understand there are quite strict NHS guidelines these days about who "qualifies" for the scans. Frequency of scans seems to vary but my understanding is that whilst they can give a reasonable indication of bone density and indicate a trend (upwards or downwards), because there is a recognised "error margin" with the scans, scanning too often might give a false picture.
I hope if you do have a scan it doesn't show osteoporosis. But If it does, I know that there are some effective treatements available these days.
Thanks Tilly, I thought it was something that we got done regularly but it doesn't seem to be the case by everyones answers. I hope you are keeping well. Take care xx
I had my first Dexa scan this morning as requested by my GP,he was surprised that my rheumy hadn't done this already.
In this area it's much quicker if a gp requests a SCAN or MRI ,cuts the waiting time by half in my experience.
I asked gp for a vit D test and that came back as deficient so on 2 adcal a day after a 3 month 'loading dose' from the hospital.The vit d test is expensive so my gp wrote the reasons why it was being done on the form to make sure the lab did it !!
Thanks Beth, That interesting, i didn't realise a vit D test would be expensive. I hope your scan is alright x
I had a bone density scan five years after being diagnosed with RA then ten years after i have just had one last month as I have had such a lot of steroid injections and my rheumy wanted to see if I had got osteoporosis. Fortunately I have not.
Thanks for your reply. It has been 12 years since i had one and i have had a lot of steroid injections so i will ask about it when i am next there. Glad to hear yours was alright. x
Not what you're looking for?
You may also like...
you know that I've just had a scan for this. I dont know whether this is because of blood tests or...
Does anyone know if methotrexate can cause bone density loss? The leaflet in metoject box re side...
on everyone else and would phone me Monday. I got to thinking I know of two other people who use...
dont know weather ive asked before how many people on here have cold feet and get cold sores and any
the youngest; the others live about 600 miles away and I've not seen them in a year.