Before I begin, I just want to make it clear that I am so grateful for all the help, encouragement and care that I have been privileged to receive from the NHS, it has been first class.
I was was 'talking' with Lavander Lady on this site earlies and I started to think of just what sort of prognosis I can expect. I read about others on this site who have been suffering from this disease for many, many years. That started me thinking about what I can look forward to with regards to lifestyle, mobility, pain relief etc etc.
I was diagnosed 3 years ago and have been in pain almost constantly. There were occasions when trying different ideologically that I had pain relief for very short periods of time. I had side effects to everyone of these drugs. I am now on my fifth drug, Tocilizamub, i have been on it since december and it isn't working very well to date.
All of you long timers, let me know what I have to look forward to. Is this the way my life is going to be u til I'AM put into the ground? Is there any point in hoping that someday I will be able to go hill walking again, spend a day in the town shopping with my granddaughter, walk up a flight of stairs, be able to jive to 'rock around the clock', to be pain free, to be able to kneel down to defrost my freezer or polish the hearth?
I am not saying all this because I'm feeling sorry for myself, which I admit at times I do, but I want to know what the prognosis is for me? Your not doctors I know but between all of you there is probably more experience of this disease! What do I have to look forward to.
I took RA out of the menopause at 60. I have no other medicinal complaints and have always been healthy as a horse. I seems to be sick constantly this past three years.....will I ever feel healthy again? Or, can I mearly look forward to "not too bad today" or "not too good today"! I just want to know so that I can adjust and come to terms instead of living in hope of a pain free life where I can live again the way I used to.
I want to know so I can adjust my expectations.