Coming off Ibrutinib: My partner has... - Non Hodgkin's Lym...

Non Hodgkin's Lymphoma Friends

1,806 members805 posts

Coming off Ibrutinib

pollyg2016 profile image
2 Replies

My partner has been told by his Oncologist to stop taking Ibrutinib, as it is no longer effective. He has been off it for the past 3 days and today experienced the most severe stomach pains. He was told by his Doctor to take Paracetamols to stop the pain. I imagine he will start getting night sweats soon. We are awaiting our next appointment with the Oncologist to decide on his next course of treatment. Has anybody else had severe symptoms when coming off the drug and how long did they last? Many thanks,

Written by
pollyg2016 profile image
pollyg2016
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Spascal profile image
Spascal

My husband has been dying to see off of ibrutin because he has some harsh side effects doing it cold turkey . Right now since he cut back he is getting some back aches that can be from that. A little more tired . Very little night sweet maybe 2 times in4 months . But he had them even when he was on the full dose of ibrutinib. He's a little worried about being off of meds completely

Spascal profile image
Spascal in reply toSpascal

I didn't mean dying I meant trying. Sorry

Not what you're looking for?

You may also like...

ibrutinib

my fiancé has been on ibrutinib since2014. His numbers all look good and he feels it has been a...
Spascal profile image

After Rixtuximab and Bendamustine - what next???

Hello everyone, I hope you are all staying safe, physically and mentally. My partner, Phil...
pollyg2016 profile image

NHL 7 Years in Remission

Hello. I was diagnosed with NHL stage 4 B-cell follicular in 2010. Involved were nodes all over as...

Oncologist or Haemotologist?

When I was diagnosed first I was referred by the surgeon to an oncologist, whom I still see. Do you...
Shar0n profile image
Volunteer

Anyone with Marginal Zone NHL?

Hello. I'm a 54 yr. old female and new here. I was just diagnosed with MZ-NHL (Marginal Zone) last...

Moderation team

krayburn profile image
krayburnPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.