my fiancé has been on ibrutinib since2014. His numbers all look good and he feels it has been a life saver. Now that he has been off of it he has been sick and in in pain for the last 8 weeks. He has stomach pain , some head aches and terrible fatigue and has lost 35 lbs in 7 weeks . He has had some night sweets but my daughter in law gave us clary sage oil from Doterra oils that we use everynight and now he has been able to sleep a little better without getting drenched.
So my question is has anyone else experienced these symptoms after stopping this medication. They have done every test there could be ultra sound, ct scan, mri, mri mrcp, endoscope, and a pet scan. Seen a neurologist, hemotologist, primary care dr and a GI doctor last . The last one did tell us that he has scrocis of the liver (wondering if this could be from meds) . They ae having him do a stress test to rule out pain coming from heart problems. Any insight please let me know.