Hello again, following on from our visit to the Haematologist a couple of weeks ago Allan has his CT scan this coming Wednesday. He hasn't been coping too well with his diagnosis as I think he was hoping it was all a mistake when the doctor wrote to say he wanted to know what was going on here after he had been almost certain Allan had CLL. The new diagnosis of low grade marginal zone NHL seems to have really rattled Allan as I think he fully expected a softer diagnosis or even that it was a cureable blood condition. I am hopeful that the results of the CT scan bearing in mind he has already had a BMB will at least take away the uncertainty of what we are actually facing. We have talked a little but I am taking things slowly as I don't want Allan to clam up and retreat from further discussion. It is such a relief to be able to be open and talk to this community and others who have been down this path. I will post again once we know more following the scan and follow up with the Haematologist in 4 weeks time (unless we are contacted sooner).
Sending all good wishes
Mary
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Maryandallan
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I was diagnosed with stage 4 NHL nearly 2 years ago and can fully understand how Allan is feeling its a job to get your head round things but just take one day at a time and he will get through this with your support. I am now on watch and wait after having R Chops chemo .Wishing Allan and yourself all the best .
Thank you so much for your response and you are right we will get through this. Life is an uncertainty at the best of times and circumstances can change at the drop of a hat so I know we will get used to our new way of life and tackle each day as it comes. My thoughts are with those whose disease has lead them down a worse path than the one we find ourselves on! Wishing you all the very best in your journey and hoping you have the best support possible.
I was diagnosed with Mediastinal LBCL 1/2016. Had R-Chop chemo, 20 radiation treatments, several infections because of my low white blood cell count, and hospital acquired pneumonia, also from lack of white blood cells. I have now been in remission for eight months and will hopefully remain there. Tell your husband he is not alone, there are many, many, many of us fighting this battle. Go one day at a time, and tell him he has a lot of people praying for him.
As a survivor (and in remission) of marginal zone lymphoma, I understand Allen's fear. On the plus side, marginal zone lymphoma is treatable and can go into remission for many years. Taking it one day at a time is the only way to be. Keeping you both in our prayers. Please keep us posted.
Many thanks Andylynn for your encouragement. So glad to hear you are in remission and hopefully with new treatments being introduced all the time there will be more options for all of us if necessary!
Wishing you all the very best and will keep posting to let everyone know how things are going with us.
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