They are starting d to be very painful some times . and because i suffer as well from IBS its more complicated . The question is : If you got a big kidney like my 1: How do do coupe with it. Do you feel breathless, can you do normal exercices, What is you perspectives for a transplant later on . Because at the moment my function i 59 %. and what does your docter tell you about it . Ive been doing drainage and for a few month i few a reliave . But does not stop my kidneys of growing .