On Nov 16, 2022, I received the precious gift of a new kidney. It came from a deceased donor. My renal panel data has been very strong and consistent since the transplant; (creatinine .88, eGFR 76.8) in labs this month. Very typical labs.
Please join me in remembering the deceased donor and their family. They are the heros!
Jayhawker
Congratulations on your 2nd Transplant Anniversary!! I know you have had a hard time with CMV, etc., but look at your labs! Fantastic creatinine and eGFR! Hope this means that things have turned around for you and all will be well now! So happy for you!!
Hope you plan a trip in your near future to see friends and family!
And YES, we would not be here today if it weren't for our organ donors, our Hero's that said YES! God bless them and their families!
The CMV did resurface this past summer. Naturally I was concerned and frustra. However, this time it resolved without treatment in 3 weeks leading to labs saying “not detected” again in three weeks. That’s where my labs read normally. So it was clear that my body recognized it and was able to respond effectively. The modified treatment plann based on my T-LGL leukemia worked. For the first time my transplant nephrologist was calm and confident about a treatment plan. My hematology oncologist had been confident about it all along but my nephrologist was not. It was a challenge to get her to work with my oncologist. She just doesn’t work with other doctors. Hopefully other patients will find her to be more open to working with other doctors after this experience.
Regardless, I’m confident we’ve got it figured out and I won’t have serious problems with CMV in my future. And I absolutely consider my kidney to be a rock star!!! Through all of that and my stress she just kept plugging away. She’s amazing!
Other good news. I’m a type II diabetic who wasn’t on meds for over a decade pre-transplant. I was placed on insulin post-transplant. My endocrinologist has been gradually cutting back on my insulin dosing due to numerous daily low glucose events. Last month he said that he will likely pull me totally off insulin in January. I’m exstatic! It looks like I may be able to handle these transplsnt meds without needing diabetes meds. Kind of incredible…
Jayhawker
Yeah for you . So glad things are working for you. What a journey though. I hope everything else is doing well. I'm still waiting. I love this song and Angelica. She is amazing. This song and Unstoppable by Sia are my "get through it" songs.
Yes, this song and about 5 others were my workout songs as I waited for the transplant and through the CMV situation (11 months) post-transplant.
Jayhawker
So happy for you that your labs are doing great. Yes all donors are precious angels
Deceased donors and live donors are true hero’s
Congratulations, Jayhawker! Here's to hoping you celebrate many more anniversaries!
Oh, it made my day to read your posts. So happy for you and wish you the best for years to come. Your arduous journey and how well you handle it was motivating. Thanks for sharing everything. Hugs and more hugs.
congratulations on your kidneyversary!!! So happy for you. Here’s to your continued stellar health. 🎉
So good to hear this🙏Your journey is truly inspirational. Wishing you many, many more years of bliss.
Prayers for your donor and the family. They are an inspiration too🙏
Happy second Kidneyversary! Thanks for the YouTube link. Wishing you many more years of health. Thank you to donors everywhere.
fantastic! Next month is a year and a half for me…still hard to believe. Putting a piece of someone else into your own body and it resuming functioning. Kind of mind blowing isn’t it?glad you’re doing better and have gotten your doctors all working together .
Definitely amazing! And you’ll soon be 18 months out!🎉
Hats off to them!
Congratulations! We owe everything to our donors and their consenting families 👍
congrats! May it give you many many many more years!
Wow...that was 2 years already...and a GFR of 76.8 , you must be rocking it !..So happy to hear from you and your inspiring story and the Donors who made it possible !
That is remarkable. A very good kidney and well taken care of by you
Congratulations on your two year anniversary! I wish you many more happy and healthy years! Both live and deceased organ donors are heroes. I feel that the best way to honor our donors is to do everything we can every day to keep our donated organ(s) healthy and viable.
I'm beyond happy for you! Imagine where would we be without our wonderful donors and our researchers. There is much promise ahead in various fields - keep the faith everyone!
The whole finding a living donor process is a JOKE!!!
I got a kidney!!
One year transplant check-up
