Transplant listing

[horsie63]

So I went for my first eval on Sept 19th, the committee meets on Wed and they approved me pending the results of my echocardiogram which I still am waiting on the referral. So they said I'm "Inactive" until then. Does that mean I accrue time from today going forward? If so, say I get my echo done and pass and then are "Active" since I signed up for a hep C kidney could that mean a transplant this year is possible? They did recommend I up my walking from every other day to every day to build up strength so I'll have to power through the tiredness. Holy cats this is nerve wracking.

[Herkidney]

congratulations! The best you can do is get the remaining test completed so that you are ready to go. I was approved Sept 14th of one year and received my transplant on Sept 18th of the following year from a living donor. My donor started the testing process in January.

You may or may not get a hep C kidney within a year - that just depends on so many factors that are completely outside of your control. So, please concentrate on the things that you can control such as completing tasks that the transplant assigns you including walking a little more. Who knows, you may receive your transplant a lot earlier than you think. You just have to be ready.

[Darlenia]

Great news! When my hubby was placed on inactive status, the clock still kept running and accrued time from the time he was approved by our transplant board. So that probably would be Sept. 21 (W) in your situation - since that's when your transplant board apparently met to make matters official. You're with a rather quick-stepping transplant center, so it's quite likely you'll get that transplant within a year since you're also willing to receive a kidney with minor issues. My hubby received his kidney (also with conditions) exactly one year on the day he was put on the waitlist. Practically speaking, once you pass your echocardiogram, I would pack a small bag with essentials. We expected a long wait and didn't do that - it's hard to think straight when you need to get on the road.

[horsie63 in reply to Darlenia]

lol…I’ve already started a flowchart as for what happens if I’m at work or driving to or from and then if I’m at home. I was a telecom network planner at one point and an an internal auditor now. I’m one of those “ just in case” people with plan A B and C.

[horsie63]

does anyone know why a blood toxicology report would show positive for cocaine in someone who doesn’t use it?

[Blue-Quilter in reply to horsie63]

Back in the mid-90's, a friend of our family was at a work-release facility as a stepping stone between serving his prison sentence and reintegrating into society. He was subjected to a UA every time he returned from being out on visitation. One time, our group got deli sandwiches. Without thinking, he ate half of his, which was a pastrami on a rye bagel, pretty normal, but this deli put poppy seeds on the bagels before baking them. He had been warned that poppy seeds (at that time) could show as opiate use, and a co-resident had tested positive a week before and was sent back to the pre-release facility to finish out his sentence. Our friend must have drunk over a gallon of water to flush all traces out of his system before he had to be back at midnight. It must have worked, because his UA was clean. That, and a lot of prayer from the group he was with! I would imagine tests have been refined over the past 30 years, so a false positive should be less likely, but on the other hand, perhaps the tests have gotten much more sensitive and can detect trace amounts from unlikely sources. I don't know if something like that could be in play here, but it's certainly worth looking into. It's my understanding that illicit drug use is grounds for removal from the program, at least where I live.

[horsie63 in reply to Blue-Quilter]

I did have a couple of small poppyseed muffins s the week before but I showed positive for cocaine which is impossible. They’ve sent it out for mass spectrometry but this is throwing me into stress and I’m afraid my Graves Disease will come active again and I’m scared of dialysis.

[Blue-Quilter in reply to horsie63]

I would ask if there are any foods known to trigger a false positive for cocaine. That's what I was trying to say, but realize it never made it from my brain thru my fingers to the computer screen -- sorry! Maybe even Goggle it on your own so you have some "evidence" to back up your request. I can see where that would be very stressful when you know it's not accurate! Best wishes getting it resolved. Please keep us posted!

[WYOAnne NKF Ambassador]

Most transplant centers do that - put you as "inactive" till all of the test results are back. And yes, you usually are already on the "list" and time accrues from that point.

From what I know, most that will accept a Hep-C kidney have a kidney within a year or so. Most have great results with the meds to treat the Hep C also.

Best of luck going forward.