Need some advice, this is so new and scary to me/us

[Jasarzi2]

My other half went into kidney failure sept of 2020, we had a live donor in 5/21 he has not sat down since the first week he’s been home. I left him alone for a week and he’s been sanding, “bonding” and getting ready to paint an old 1988 car while on his 3 month leave from work. His creatinine and GFR numbers are getting worse and I think it’s from what he’s breathing in and he thinks I’m absolutely crazy. We argue about this constantly. We have a Drs appt this Thursday for an ultra sound. I just wondered if anyone has any information or a similar situation with resources I can use to show him how dangerous this “project” is for him to be doing

[LisaSnow]

He is still.on high dose of steroid at this early stage so he is probably not very "logical" or calm. Please be patient with him and discuss your concerns with his care team. I am sure the medical team's advice would be accepted more easily by him.

[Redbone55]

I agree with Lisa snow I believe nothing is too small or too big or too minor or trivial to talk with your transplant team you rather be safe than sorry. And I also believe that he will be more receptive hearing it from his transplant team. He will be fine just give him a little time be patient…. Good luck!!😊

[LisaSnow]

How is he doing? Has he agreed to slow down? High dose steroid can give users a false sense of high energy but soon enough the clinical team will taper it down to a lower dose. Be patient.

[Gremie]

Until his steroid dose is regulated he ‘can’t’ slow down, or have a well-thought out conversation. As a person who is very sensitive to steroids I know. I would call his team now not wait for an appointment. Sometimes the medication reaction can spiral.