Retaining fluid

[kimosabi1961]

I am 1 1/2 years post transplant. Over the last several days I have gained at least 8 lbs of fluid. I called my Nephrolegist and was given more fluid pills. Has anyone else ever had this problem with a transplant?

[LisaSnow]

Not me personally but I have gained weight too especially since COVID! I wish mine was just fluids!

[Drdetroit]

I am 8 &1/2 yrs post transplant. after 3 rejections over the yrs, my creatnine is 2.5. I have retained fluid for the last 2 yrs. my DR. says I have 30 lbs of fluid. I have been taking lasix daily for the last few months to keep it at bay. My GFR is 25%. What is your creatnine? Good Luck!!

[kimosabi1961 in reply to Drdetroit]

My creatinine falls between 2.0 and 2.5. Last labs it was 2.4

[Drdetroit in reply to kimosabi1961]

That's a little high, talk to your Dr. Mine is high because my last rejection was the BK Virus coming back. It did come down from 3.2 & is holding steady at 2.5

[WYOAnne NKF Ambassador]

I am 20+ years post transplant and have fluid retention problems off and on. I know when I fly on a plane the next day I usually need to take a diuretic (lasix).

A couple of years ago I was taking lasix daily. Now it has settled down a bit, but still need to take the diuretics every 3 days or so. When I have labs run my creatinine is 0.8-1.0, but my BUN usually shows that I am dehydrated even though I drink plenty of water everyday. My nephrologist feels that there may be a narrowing of the ureter leaving my kidney. All is well though since my creatinine is great!

[Hidden]

Yes. If your nephrologist tells you your kidney is functioning well, then watch the salt. There is salt in everything. Watch the carbohydrates as well. I retain fluid on my ankles and fingers. I had to stop my diuretic due to some less than optimal labs. I really notice fluid retention if I eat out or when I used to fly. I have to watch what I eat all the time. I can't eat whatever I want. Try to get a handle on what you are eating and drinking. Maybe log your food/drink intake for awhile. Hope this helps. No one likes excess fluid.

[kimosabi1961]

My doctor increased my Torsemide fluid pills and that did the trick. Also I'm watching salt intake.