Nerve pain and going to WASHROOM too much

[Tahmed251]

I am 10 months post transplant and I am still having nerve pain in my surgical site. The pain gets worse when I were pants or even when I put on a belt. When I sit down pain gets worse as it puts too much pressure in the nerves in the abdomen and this puts too much pressure on the bladder and I get urge to uraniate too much. I am going too many times to the WASHROOM during work and my employer does not like this as it affects my work performance. My first issue is the nerve pain in the surgical site and the second thing is going too many times to uraniate or I must find a WASHROOM otherwise I have pain in the bladder. Has anyone had similar experience as me and would you like to share. Please comment.

[JackieShan]

Completely understand this as I have the same. I bought some elasticated pants/ trousers - quite smart ones with a tie at the front so that you can adjust them- and these are so comfortable. My scar goes up to my waist line so I cannot bear any pressure there. I am coming up to the end of the first year, and can wear normal pants at times, but still rely on the elasticated ones. As your stomach goes down post surgery (takes a while as your muscles have been cut) and the scar loses sensitivity, you will be able to go back to normal pants. But sitting at work at this stage, you really need to alleviate the pressure on your abdomen. I don't know where you live, but in the UK, any workplace would have to accommodate the frequent urination issue and make adjustments for you so that you can comfortable and healthily carry out your work. Your employer should be more understanding - these issues will not last forever. This is my second transplant and you will start to feel more comfortable in your second year. Hope this helps.

[Balap]

frequent urination is a sign of urinary infection

[WYOAnne NKF Ambassador]

So sorry you are having nerve pain issues!

Boy does that sound familiar! Have you reported this to your transplant team?

My team sent me for tests and then to a surgeon. I had "entrapped" nerves. The way I understand it, nerves were caught in my transplant incision. I also had an incisional hernia. The surgeon actually ordered a "standing ultrasound" and could see where the problem was with the nerves.

Anyway, hernia was repaired and he actually was able to remove the nerves, or part of them. No more problems for me.

Nerve issues are suppose to eventually burn themselves out.

You need to tell your problems to your transplant coordinator, especially it seems to effect your quality of life!

Take care and keep us posted!