Kidney transplant

[nharper]

Hi, Nadine would like to share my 30 year old transplant journey and encourage others

[maryalraines NKF Ambassador]

Great, we need your input. I am only 19 mos post transplant and in many ways "still learning the ropes". People like you can help. Thanks

[nharper]

Anyway I can help let me know. What has work for me is diet , taking med, listen to and talk with your doctors, of course exercise which I am still a work in progress in that area.....

[ankitarai267]

Please do share your journey

Would really be beneficial for us

[Yankcg70]

Hey i too would love to share my story also. I had my cadaver donor transplant when i was 18 and am now 47 years old. I no longer take anti rejection meds and have been blessed to have not had any rejection episodes ever. I feel sure like me you started on alot of the old school meds and so many things have changed since I had mine. Would love to be of any help or discuss with other long term recipients the ups and downs!!!

[Huzaif in reply to Yankcg70]

What was the reason for stopping anti rejection medicines? After how much time you stopped the medicines post transplant?

[Yankcg70 in reply to Huzaif]

The main reason was honestly because of the long term effects of them. Prednisone long term in larger doses is not good for the body and my dr and many other researchers feel that Imuran in higher doses causes infertility which she felt i was pretty much sterile at that point since i had never and still been able to conceive. I been on prednisone for almost 13 years after the transplant and my first dr weened me off that before she retired. My current dr weened me off the other 2 about 2 years ago. And since my levels were already good it was a weaning process over about a year. And constant bloodwork. But this would all depend on the patient. I know my dr has told me he has had several patients who have done this on their own without his knowledge and it did not go so well. So i think if you have had long term success and are a good patient it is very possible after a certain length of time it can happen.

[nharper in reply to Yankcg70]

When did you have transplant

[Yankcg70 in reply to nharper]

July of 1989 and it was a cadaver transplant not a living donor/family member. So i like to think there is hope for other non family/living donor recipients for a future of not having to use or very low dose use of immunosuppresents.