Steroids

[Rusty8]

Hi this is my first time for being on here so I would like to say hallo to everyone

I had a kidney transplant 25 years ago I am shush 71 lol

I have other problems I.e a/f hips knee replacement ,ulcerative colitis spinal stenosis

And this nasty p m r

I am on the usual kidney drugs but also on a form of morphine and steroids touch wood kidney results have been ok is there anyone out there on steroids and are they having problems with it

As you can imagine I do not want to upset my kidney now but I sure as hell cant live with the pain from this p m r

Sorry for it being a rant on the first but I'm sure you people out there will understand

Love to hear from you take care

[KelliC_NKF]

Thanks for sharing your experience! We are continuing to develop this online community group and plan to officially launch it in June. Please check back in June to connect with other kidney transplant recipients.

[Patient-Empowerment NKF Ambassador NKF Peer Mentor]

Hi Rusty8,

I've been on Prednisone for nearly 7 years and I'm starting to have bone issues (factured clavicle). Like you, I don't want to upset things from an immunosuppressive standpoint either, yet I suspect steroid continuation will only exacerbate risk of fractures. Are you on osteoporosis meds right now? If so, what are you taking and for how long? Did your issues occur while on these meds?

Look forward to learning more...

[Rusty8 in reply to Patient-Empowerment]

The doc put me on pills this week as I got lost as usual

They are ad cal and alendronic acid don't know how long for I believe it is for a good few years as somewhere along the line I have read it takes 5years to do anything lol will look into them later and get back to you ok

[marcyc NKF Peer Mentor NKF Ambassador]

Sorry for all your pain. Can't give medical advice but would recommend you are honest with your transplant doc about your concerns. There might be an alternative. Best of luck.

[nharper]

What is pmr

[marcyc NKF Peer Mentor NKF Ambassador]

Chronic pain is very difficult to deal with. Certainly can wear you down. Have you tried some alternatives to drugs. Massage, physical therapy, osteopathic manipulation, things like this? Might help get some relief? Ask your doctor what else might help with the pain. Sorry you are going through this.