Twitching pain in stomach

[jan1317]

Hi, After my kidney donation i am having a twitching pain in my kidney removed site. .Doctors can't say what's causing it .I had a open nephrectomy. . Its been 2yr and i'm still suffering with the pain . It is very painful and just lasts for 10-15mins . . .please if someone can help me figure out what is happening.Is it normal to have this kind of pain?

[EchoMax1012]

I'm very sorry you are going through this, Jan. I am not an MD, but I did read an article about post-nephrectomy pain, and the incidence even after 6 months was only about 4%. So, if you're 2 years post op and still suffering pain, you are really unlucky. I'm imagining you have talked to the nephrologists who did the operation--I'm wondering if you should go to another nephrologist or nephrology group for other possible insights and hopefully some remedy. Good luck--I know this must be as frustrating as it is painful, and I hope you find some answers!

[jan1317 in reply to EchoMax1012]

thank you so much for the advice . . I guess i will visit another nephrologist . ..

[DSKdonor NKF Ambassador]

I had some minor twitching pain at the site of my missing kidney - I was told it was "Phantom" pains - but doesn't sound as severe as yours.....

[Heidibuck]

Hi Jan1317. I call them "ghost pains" or "Phantom pains". (I'm not a Dr.- just a donor). Even 10 years later I will get some numbness and tingling. It will get better- nothing to worry about. Feel better soon.

Heidi

[jan1317 in reply to Heidibuck]

Thank you Heidi. . . But the pain that i get sometimes is very painful and unbearable . . It only lasts for 10-15mins. . .