I just wanted to say thank you to those who. Told me dialysis drain pain will get better. When I started in February on pd dialysis I was on my knee every time it drain . I was like no way my nurse and yall kept saying giving it time I admit I thought you all were crazy . But I may have a little time to time but not like when I first started.
I just got out of the hospital yes I was in again it was very serious this time I had a blood infection sepsis they said good thing I came into the er .
but every night they had there on pd team who would set up dialysis that what they did I am grateful I only fo 9 hours over night . I think on here the longest I heard was Ron who had to do 12. But the pd dialysis nurse told me he had two paients there that he has to hook up they do 18 hours that like a whole day.
just wonder how many hours of pd everyone has to do. I know we are all differnt .
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Beachgirl32
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When I did PD it was for 7 hours every night. Now I do hemo for 3 hours 3 times a week. I think part of the reason PD failed was 7 hours wasn't clearing all the toxins but no one would listen to me since my kt/v was in the 2's.
And I wanted to say holy cow! Blood infection? Is that from where you broke your ankle? You've beaten my time in the hospital so stop now....lol. Are you okay now?
Thanks Horsie I just came home yesterday I I was in 6 days they were very throat because I think I was there just two weeks before . I really think maybe I had it then but they said then the cultures they had were contaminated only one took do they only gave me one thing if antibiotics at this that time and I think sent me home to early.
I was a sick girl this time my husband thought I look like a ghost before I went to the er my son took me he told them firmly you need to start her on fluids right away and antibiotics . They actually listen to him . Doctor said good thing they did start an antibiotic right away , anyway more blood cultures of thiscobe was done right show I had sepsis a blood infection what was the bacteria that took more time to grow . Infectious diase doctor was called in after a few days bacteria sho ecoli he said could have been from a uti I know you said you had no uti symptoms but there is a silent uti . Or it could be from hardware in my foot from broken ankle he said it really doesn’t matter the important thing is treatment and you got on treatment right away . I had so many bags of Anton through Iv in the hospital. He sent me home with oral . This doc want to folllow up with me in two or three weeks to do another blood culture because he want to make sure this thing is gone . He said this one could of kill ne because I wa very sepsis and I almost said no going to the er I thought it may pass but I know I must take everything serious .
Oh my....!! Sepsis is exceptionally dangerous. So glad you were diagnosed! And your doctor(s) are watching you carefully. You mention silent utis. My husband actually has a constant uti. Kidneys and bladders are definitely interconnected - it's not unusual to have issues with both. Thankfully, my hubby's situation hasn't moved into anything life threatening. It's really nice your hospital was able go give you PD. That's where my husband got to experience the Amia cycler and he loved it. Keep on keeping on Beachgirl. You're on the mend so you're on a positive path! Hope that your ankle heals up well too.
Amen to that. Every time the ambulance comes for someone at the center I get anxious...think I have PTSD from being in the hospital so much. Watch out with the IV antibiotics....they had me on them and they killed all my gut bacteria and gave me diarrhea. That's no fun when you have a drain tube in your back and can't get out of bed. Had to use the port a potty next to the bed.
Exactly what I did in hospital the portable potty right next to my hospital bed yes the Iv antibiotics gave me diarrhea they sent me home on oral thank goodness
At my peak, I did 13 hrs per night. I refused to do HD...so I opted to do more hours on PD. Kept the daytime to spend time with my very young toddler. Good luck.
Won't lie, it was rough and horrible period but I didn't have many options. I was at 0%. But was totally worth it not to do hemo and spend whatever time I could during the day with my child. 🥰
Congrats on the transplant! I'm sure that had to be a tough period of your life and you had to have felt like crap at 0%. But you survived! Whoo hoo. Really glad you're doing well.
Holy Smokes, you have been through the wringer! But it sounds like you came out of it swinging. Give an attaboy to your son who took you to the ER and dealt with em. I think this is everyone's fear is getting what you just got when on dialysis. Glad you are having a positive outcome!
So yeah, I'm still on 12 hours. I always knew I was slow, but I have Netflix and other video apps and ain't afraid to use it. I look at it like I'm on vacation and can stay in bed for a while longer How long were you doing at home before going to the hospital?
I am eight hours at night on PD. Sometimes the drain pain is pretty nasty, but for the most part, it’s OK. Bowel movements seem to help with that. Idont sleep well at night most of the time. When the machine shuts down around 7:30, I often head back to bed until at least 10 and sometimes noon. Lucky I am retired and can do that. Doesn’t leave much day though………
The pain varies. Mostly on the initial drain towards the end. I feel aaininthenight and sure enough it’s a slow patient warning. Get up, walk around a bit and it’s all good. I usually catch this before the alarm goes off as I feel that pain and it wakes me up.
Have you told your PD Nurse that you are having drain pain ?..They can sometimes adjust the flow or leave just a small amount of fluid in your peritoneal to cushion you...I also make sure to sleep on the side where my exit site is and make sure my my tubing is not cramped or twisted...you also want to make sure your Cycler and fluid bags are at the same height as your bed...Best wishes for you
I could not sleep with that cycler. I would awaken tired and sleep 1/2 day so doing it at night was horrible for me. I felt like a zombie/prisoner mentally. Everyone is different you need to find what works mentally and physically for you. I did manual bags and it went quickly but was transplanted and so very thankful for my “Bucky” my transplant.
My wonderful husband donated and I was matched up in the pairing process with NKR.
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