I was recently in hospital and ended up very ill with sepsis and I’m also on dialysis 3 times a week but since I got discharged I’m really struggling and the simple tasks totally exhausts me. I’m hoping I will get better over time but I hate feeling so weak.
Before I went in hospital things were going really well but since then I’ve also totally lost my appetite, I was on a nj feeding tube so my feed has been increased to cover me not eating.
How is your blood work looking, maybe your albumin is low? or you became more anemic? Did you get enough dialysis at the hospital?
I am pretty tired a lot of the time. I use the Amia machine at home,every night. It does wake me up and I get up at 4 am to disconnect and let the dog out and give him a snack….sleep til 8 or so, shut down the machine and often sleep until nearly noon. It’s never very long at one time. I get very tired doing things too.l…if I take a shower, I have to lay downforce awhile. Or unload the dishwasher…..have to sit for a bit. All my blood tests say everything is fine. I should exercise more, but I am too tired todo that most of the time.
I do have fibromyalgia and chronic fatigue syndrome and I think the kidney issues make it worse. I am sooooootired of beingvtired
Thanks for the replies, my blood work is normal but I did need a blood transfusion while in and doc says results are now stable but I just want to be back to my normal self. Getting my stent changed did improve my kidney function in that it was spoken about me going down to 2 days a week dialysis but I’m still on 3 days at the moment.
I guess I just wanted to moan about how rubbish it is being tired all the time, I live alone too so everything just seems so much of an effort, doesn’t help that I’m worried my dog is missing out as I’m relying on others at the moment to walk him.
Possibly thyroid?
I think this being in the hospital can wipe you out awhile . I was in the hospital in May and in June and my appetite is just getting back to almost normal I am on pd dialysis claria machince . I have to push myself each day I have terrible problems with insomnia so that part of my big problem I can totally relate to you . I just do best I can I am finally back walking one mile but it three time a week not every day like it was before but I set little goals I fine that help.
The last month on PD I had no appetite. Was in hospital they put in a catheter and i have been feeling better on hemo. Got my appetite back too.
SEPSIS is a major illness not to be taken lightly. Recovering from this takes time and patience. Allow yourself a couple of months to rebound back to what you consider normal. Suffered from 7 episodes all landing me in hospital for 3 weeks to 3 months. Be gentle to yourself. Take naps. Eat the cheesecake (binders) . Sit outside in the sun. Watch a movie. This time allows all your cells to refuel, rebuild, repair. Doing too much before you're ready lengthens the recovery process. Be selfish, take care of you first. Hugz and Blessings
hiya, sorry it’s taken me so long to reply and I appreciate everyone who took the time to reply to me.
I was at the doctors and he seems to think it’s because I was put on a high dose of high blood pressure tabs and statins so I’ve to stop them in the meantime and see if that helps so I’m keeping my fingers crossed.
Until then I’m spending plenty time on the sofa, watching tv and occasionally snacking.
I feel angry and devalued.
Phosphorous questions
Does any one else have Exocrine pancreatic insufficiency (EPI)
