1 month down and doing great: My husband... - Kidney Dialysis

Kidney Dialysis

2,624 members1,218 posts

1 month down and doing great

Curiouskidney51 profile image
10 Replies

My husband started PD a month ago and he is doing great. Lessons learned so far.

1) Use a strip of Duct tape to tape drain tube under the toilet seat. We tried everything and now it’s a breeze.

2) Prepare early in evening then just hook up at bedtime. Less stress!

3)We tried a new mattress and box springs and threw off the flow so went back to old comfy mattress and worked better.

Written by
Curiouskidney51 profile image
Curiouskidney51
To view profiles and participate in discussions please or .
10 Replies
MatisseT profile image
MatisseT

How do you set up a drain tube to your toilet?

Darlenia profile image
Darlenia in reply to MatisseT

It's easy! The tubing connects to the cycler (via a cartridge) which gently and automatically pumps the solution to the right places - including the toilet. The tubing for waste can range from around 12 to 24 feet or so. You order the length(s) you need. Here's a great video providing step-by-step instructions. The part regarding tubing and toilet is at the 7:00 minute mark. The narrator uses a "clip" to attach the tubing to the commode. In our case, the clip wasn't wide enough to accommodate our toilet rim so we simply taped it down. Please note that this lady uses the Amia cycler. This the the "cadillac" of cyclers. Try to get it for yourself. Your center may fume and fuss, but more and more people are getting them. youtube.com/watch?v=OrYewHH...

MatisseT profile image
MatisseT in reply to Darlenia

Thanks so much, Darlenia. I am going to watch the video now. I have a Liberty machine which has been ok. I had to return the first one for malfunction. Did'nt know about the Amia and will inquire my clinic. You are the best!

Darlenia profile image
Darlenia in reply to MatisseT

The new Liberty cycler may be equivalent to the Amia. If so, you're lucky. Many have the old style cyclers.

Jayhawker profile image
Jayhawker

So glad to hear how well this is going! And, great tips! I’m planning to drain fluid directly into my toilet as well. Do you have to save one bag of drain fluid for your dialysis clinic to analyze? If so, how often do you have to do this?Jayhawker

Darlenia profile image
Darlenia in reply to Jayhawker

In our case, it was quarterly.

Jayhawker profile image
Jayhawker in reply to Darlenia

Quarterly is definitely doable…

Jayhawker

Curiouskidney51 profile image
Curiouskidney51 in reply to Jayhawker

Well our first time is monthly and I’ll find out next week. I thought it was monthly at VA.

Oceanviewed profile image
Oceanviewed

Glad to hear you are doing so well. Its a relief to have someone have a positive experience. I was getting anxious about doing PD after reading about so many people having difficulties. Thank you for sharing. Hope you continue to thrive

mieka profile image
mieka

Sound like you are figuring it out. Instead of the tape, there is a clip that fastens on the edge of th toilet. They come in different sizes to fit your toilet. Go on line & search for drain clips. My first one did not fit & the company replaced it for free. Keep the one for traveling - it may or not work wherever you go but who knows? If the clip does t work - I too set up my machine late in the afternoon, so getting ready for bed is easy.

Not what you're looking for?

You may also like...

Fed Up with everything.

I have been on haemodialysis since May. Having completed all the tests etc at the beginning of...

Insurance and transplant woes

I have two things yet to do to get back active on the list after being in the hospital for 2 months...

What a week!! (Starting HD, continued)

Where was I? Ah, yes. I had just spent 3 days in the hospital getting in-patient dialysis for my...

Officially Starting HD

So, my labs have finally gotten to the point where they've decided I need to start dialysis. eGFR...

Fistulagram

So this Wed (Feb 21) I go to the hospital for a fistulagram. My fistula was created on Dec 22 and...